Community Forum Archive

Topic: Diagnostic Dilemmas and Testing

lip-smacking, Deja Vu, fear episodes

06/2020 | 0 Comments

Hi all, I have noticed that my wife (30 years old) makes lip-smacking sound often when she is asleep with rare jerks, sometimes she wakes up screaming...
Focal epilepsy that moves around

06/2020 | 2 Comments

Hi I have been diagnosed with focal epilepsy. However, where that activity originates from seem to be moving around; My first EEG's showed that the...
I don't know what to do...

05/2020 | 1 Comments

So this is probably going to be pretty long (sorry about that) but about a week ago I OD'ed on my medication (Topamax) and ever since then I've been...
72-hour VEEG - what to expect?

05/2020 | 2 Comments

Hello everyone, I had my first ever tonic-clonic seizure last Thursday, before then I now realise I also appear to have been experiencing focal...
Violent Physically Agressive Seizures

05/2020 | 2 Comments

Hello can anyone help with this..my 20 year old daughter has seizures since she was 4yrs old Every time she lets out a loud ‘woowoo’ scream and then...
Video EEG

05/2020 | 2 Comments

Hello, I am fairly new to dealing with seizures. My daughter now has a VP shunt and also has what were diagnosed as complex partial seizures a few...
Could I actually have PNES?

04/2020 | 3 Comments

Hi there I’ve been experiencing seizures since I was 9. I’m now 20 however I have only just been diagnosed as having epilepsy. My first seizure...
Aura during sleep

04/2020 | 1 Comments

Hi guys. My name is Andriani , 32 years old, had a brain surgery 4 years ago for removal of a tumor. I wanted to ask if someone experienced something...
I need help

04/2020 | 2 Comments

Hi all, I’m new to the forum. I had my very first seizure in 2017 or 2018, I remained fully conscious throughout the seizure, but experienced memory...
Struggle with epilepsy

03/2020 | 2 Comments

Hello everyone! My son is 10 years now, he has had his first tonic- clonic seizure when he was 4 years old it happened only once but age 5 the...
EEG strobe light question

03/2020 | 2 Comments

Anyone else have their eyes very rapidly 'vibrate' side to side during one of the strobe lights? It was as if my eyes were trying to follow two...
Am I developing new symptoms?

02/2020 | 2 Comments

Hi there, 4 months ago I developed what I think is TLE. My symptoms at the beginning were a extreme deja vu of a dream I’ve never had, extreme fear...
Misdiagnosis

02/2020 | 2 Comments

hi. in 2007 after almost 10 years of seeking help and being medicated with a heart medication I was diagnosed with left temporal lobe epilepsy. I saw...
Help understanding daughters eeg report

01/2020 | 1 Comments

My 10 year old daughter has been having episodes of dream like states when she is awake. She had a sleep deprived eeg before Xmas and they've now...
Three day episode

01/2020 | 2 Comments

I'm 35 and have had absence seizures since I was a child. I was lucky that one was caught on my first EEG. It is managed with Lamictal and I haven't...
Advice for first doctor visit

01/2020 | 6 Comments

I have been having strange symptoms for almost 3 years. It started off as complex scenic hallucinations that occur in the dark room - mostly at night...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.