Hi all, I’m new to the forum.
I had my very first seizure in 2017 or 2018, I remained fully conscious throughout the seizure, but experienced memory issues such as not remembering my name or age. This seizure lasted a total of 5 hours, hence I was rushed to the local hospital by ambulance. The emergency room were absolutely useless, and did nothing to stop my continuous neck spasms/twitching which the first responders had identified as a myoclonic seizure. Fast forward 4 months, I had an EEG, which came back normal, as I was made aware that they only detect abnormal electrical activity during that moment. I had one appointment with an epilepsy specialist, where I described all my symptoms which ranged from terrible headaches, smelling faeces when no one else does, muscle limpness feeling as if I was going to fall down suddenly and feeling extreme soreness/tiredness after a Seizure. All the specialist did was look at me like I was crazy, and define my seizure activity as non-epileptic and advise me to see a psychiatrist/psychotherapist. After being dismissed like I was, I started to believe I was crazy, and that my seizure activity was merely all psychological and wasn’t actually happening. So I continued to deal with my seizures alone without treatment. Fast forward to now, I’m now a university student struggling, as I have a great aversion to flashing lights, which makes clubbing difficult. The uni lifestyle revolves around sleepless nights, which I have noticed triggers my seizures, along with stress, alcohol and flashing lights. My seizure activity is now more often than it used to be and is really interrupting my everyday life and studying unfortunately. I have been tempted to go and see a doctor in the city I go to university in, however my previous experience with my possible epilepsy treatment/testing years ago, has left me a little discouraged. Sorry for the lengthy-ness to this post. Am I crazy? Or is everything I have and am currently experiencing myoclonic epileptic seizures or something else all together?