I have been having strange symptoms for almost 3 years.
It started off as complex scenic hallucinations that occur in the dark room - mostly at night. Then after I fall asleep I would be jolted awake and the visions would be everywhere. Everything I see is I front of my vision, not in my head. nothing is scary, most of what I see is familiar: cartoons, people, landscapes, shapes, colors. it’s like a hologram.
Also during the day I may get blurry vision, wiggly lines, sizzling in my vision, followed by a sense of confusion, exhaustion, uneasiness. Several times I did not know where I was or why.
After these types of incidents I am low, wiped out. Sometimes for days. I call it my spell since it seems to go on for a while and then I will get a break.
Once I felt like something was pushing my shoulder down from above and then I could only walk to the left after that.
Another time what I was reading switched around and looked like Spanish.
I have an oncologist and when I told him about it he sent my to a cancer neurologist just to be sure. MRIs, spinal taps, eeg, balance and vision tests all were normal. Even did a comprehensive sleep study. From that it was proven that I was literally jolted awake, not dreaming when I have these episodes. No diagnosis. I am seeing a psychologist monthly to track my symptoms. No mental illness, no psychosis.
I finally decided to get an appointment with a neurologist that specializes in epilepsy since what I am experiencing falls closer to that category. I feel like I am in the middle of an aura.
So any advice on what to ask the doctor would be greatly appreciated. Anyone with similar symptoms I would also love to hear from you.