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EEG strobe light question

Fri, 03/06/2020 - 23:19

Topic: Diagnostic Dilemmas and Testing

Anyone else have their eyes very rapidly 'vibrate' side to side during one of the strobe lights? It was as if my eyes were trying to follow two separately flashing lights, except it was the fastest my eyes have ever moved. That's the best way I can explain it. I also saw these weird black zig zags lined up and slowly moving, like those pictures you can look at oddly and eventually a shape will pop out. The last two frequencies had me seeing pretty cool, fairly intricate circles moving around. That was neat. I have no idea how to explain the events better, hope it wasn't confusing. Did anyone else experience this? I'll be getting my results of the eeg on the 11th but my doctor is almost certain I'm experiencing temporal lobe seizures.

Comments

I never recall having the

Submitted by birdman on Sat, 2020-03-07 - 20:21

I never recall having the eyes move side to side during the EEG/ strobe light test. But the incredible shapes and designs that came with the test were neat. I was always afraid to mention my experience to anyone as I thought they might have thought I was crazy. But I guess it is normal to experience the shapes. Thanks for bringing this up.Mike

Hi,Thank you for posting and

Submitted by Anonymous on Mon, 2020-03-09 - 08:50

Hi,Thank you for posting and for sharing your experience. Seizures and triggers can take on many different forms and affect different people in different ways. Learn more about seizures and triggers here: https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during-seizure https://www.epilepsy.com/learn/triggers-seizures It's important that you’re continuing to follow-up with your healthcare team to explore this further and to review the results of your EEG, or if you experience any changes in symptoms, side effects, moods, behaviors and seizure types/frequency. For more information about EEG readings, please visit: https://www.epilepsy.com/learn/diagnosis/eeg/video-eeg . Documenting your experience in detail, (like you’ve done in your post) will be very helpful to review with you doctor’s. You may want to consider using a journal or a diary like My Seizure Diary, which can help you organize your health records and is a great tool is a great tool for identifying & tracking seizures, setting reminders, managing medications, recording moods,behaviors, triggers, and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline . Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates , to find support groups, events and programs in your community.