SUDEP Action Day


  • Encourage people with epilepsy to learn about SUDEP and their individual risk
  • Show what is currently being done to tackle SUDEP
  • Promote ways people can manage their epilepsy to reduce their risk
  • Highlight the need for more research into SUDEP to help save lives
  • Raise public awareness about SUDEP
  • Honor the lives of those we have lost

SUDEP Action Day is your opportunity to talk about Sudden Unexpected Death in Epilepsy with your healthcare provider and the epilepsy community. Only by talking about SUDEP, what it is, and how to prevent it, can we help to make a difference and reduce risk. Have honest conversations about SUDEP risks and prevention. 

Find out how to have the conversation with your medical professional with our brochure, Asking Questions About SUDEP.

  • Change your Facebook or Twitter cover to support SUDEP Action Day.
  • Post a picture on your social media of you holding the SUDEP Action Day logo. Don’t forget to include the hashtag #TalkSUDEPNow and #SUDEP.
  • Use the hashtag #TalkSUDEPNow to talk about how you are reducing your SUDEP risk. Learn how to reduce your risk. 
  • Talk to your healthcare provider about SUDEP. Share how the conversation went with the campaign hashtags.
  • Share posts on Facebook from SUDEP Action and Epilepsy Foundation. Retweet posts from @SUDEPAction and @EpilepsyFdn.
  • If you have lost someone to SUDEP or an epilepsy-related death, contribute to an epilepsy death registry.
  • Commemorate your loved one by sharing their photo and name on Facebook and Twitter with the hashtag #SUDEPActionDay2022 and #InMemory or by creating a Remembrance Memorial.
  • Visit to find more ideas and resources

Learn More And Share This Video

Dr. Jeff Buchhalter on the Ketogenic Diet and SUDEP
Provided by our partner, The Charlie Foundation for Ketogenic Therapies

on Monday, October 15, 2018

Reviewed By:

Alison Kukla MPH

on Monday, April 04, 2022


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