SUDEP Action Day
Each year, the Epilepsy Foundation recognizes — a day devoted to raising awareness SUDEP Action Day — a day devoted to raising awareness around the world about sudden unexpected death in epilepsy (SUDEP) and inspiring action to save lives. On Join the Epilepsy Foundation on October 20, 2021 and start a conversation about SUDEP and risk prevention. Only by talking about SUDEP, what it is, and how to prevent it, can we reduce risk.
What Are The Goals Of SUDEP Action Day?
- Encourage people with epilepsy to learn about SUDEP and their individual risk
- Show what is currently being done to tackle SUDEP
- Promote ways people can manage their epilepsy to reduce their risk
- Highlight the need for more research into SUDEP to help save lives
- Raise public awareness about SUDEP
- Honor the lives of those we have lost
Start The Conversation
SUDEP Action Day is your opportunity to talk about Sudden Unexpected Death in Epilepsy with your healthcare provider and the epilepsy community. Only by talking about SUDEP, what it is, and how to prevent it, can we help to make a difference and reduce risk. Have honest conversations about SUDEP risks and prevention.
Find out how to have the conversation with your medical professional with our brochure, SUDEP: Knowledge is Power.
How To Get Involved
- Change your Facebook or Twitter cover to support SUDEP Action Day.
- Post a picture on your social media of you holding the SUDEP Action Day logo. Don’t forget to include the hashtag #SUDEPActionDay2021 and #SUDEP.
- Use the hashtag #SUDEPActionDay2021 to talk about how you are reducing your SUDEP risk. Learn how to reduce your risk.
- Talk to your healthcare provider about SUDEP. Share how the conversation went with the campaign hashtags.
- Share posts on Facebook from SUDEP Action and Epilepsy Foundation. Retweet posts from @SUDEPAction and @EpilepsyFdn.
- More Ways To Get Involved
- If you have lost someone to SUDEP or an epilepsy-related death, contribute to an epilepsy death registry.
- Are you a health care provider? Get resources and help for talking about SUDEP with your patients.
- If you are a health care provider, talk with your patients about their risk of SUDEP.
- Sign up to be SUDEP Awareness Ambassador all year long by emailing firstname.lastname@example.org.
- Commemorate your loved one by sharing their photo and name on Facebook and Twitter with the hashtag #SUDEPActionDay2021 and #InMemory or by creating a Remembrance Memorial.
- Visit sudepactionday.org to find more ideas and resources
10 Ways To Reduce SUDEP Risk
- SUDEP stands for sudden unexpected death in epilepsy. Learn more in this SUDEP FAQ.
- SUDEP is linked to seizures; the best way to reduce your risk is to have as few seizures as possible. Find tips for managing epilepsy and seizures.
- Take your medication regularly and reliably to get better seizure control. Learn more about medication adherence.
- Speak to your doctor before making any changes to your medication.
- Make sure you have regular reviews. Find tips for talking with your health care team.
- Discuss any lifestyle changes, such as having a baby or going to university, with your doctor.
- Avoid excess alcohol consumption and using recreational drugs for better seizure control. Learn about preventing SUDEP.
- Tell your doctor if your seizures have changed.
- If your medication isn’t working, don’t settle for continued seizures. Ask your doctor what other options there might be, such as the ketogenic diet, surgery, or implanted neurostimulation devices. Learn about epilepsy treatments.
- The risk of SUDEP varies from person to person. Not everyone with epilepsy is at risk; it is important you discuss your risk with your medical team. Find tips for talking about SUDEP.
Learn More And Share This Video
Dr. Jeff Buchhalter on the Ketogenic Diet and SUDEP
Provided by our partner, The Charlie Foundation for Ketogenic Therapies
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