Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Tuesday, December 05, 2023
Building a Supportive Community on My Journey
In 2020, I experienced a terrifying seizure during the height of the COVID-19 pandemic. Unfortunately, I had another one in 2023 that was accompanied...
Thursday, November 30, 2023
Educating Others About Epilepsy
I was 22 years old when I was diagnosed with epilepsy. In January 2022, I woke up with what felt like a severely swollen tongue, blood on the pillow...
Tuesday, November 28, 2023
I Am 1 in 26
In 1970, I became one of the 26 individuals who developed epilepsy in their lifetime. At the time, my diagnosis was verbal auditory agnosia, which...
Tuesday, November 21, 2023
Epilepsy Awareness Is Critical
At 51, I was diagnosed with epilepsy. My first seizure caught me totally off guard. My day started off normally. Nothing was unusual. I was working...
Tuesday, November 14, 2023
Advocating for Myself and Others With Epilepsy
In the fall of 2017, I did not know much about epilepsy. Sure, I had heard about it, but I had no idea what triggers were or that epilepsy affected so...
Thursday, November 02, 2023
My Journey With Epilepsy and Pregnancy
I was diagnosed with atypical absence seizures as a child. I was having hundreds per day and not knowing. To my parents and teachers, it could be...
Tuesday, October 31, 2023
Sharing Our Stories to Create Awareness
I was diagnosed with epilepsy as an adult. My wife and I were driving home from Las Vegas, and apparently, I had experienced a seizure while in the...
Monday, October 30, 2023
Epilepsy Does Not Have Me
My epilepsy journey began at the age of 16 after I experienced two seizures in my sleep. I remember waking up with everyone around me and not knowing...
Wednesday, October 25, 2023
Succeeding Despite Epilepsy
I had my first seizure when I was 14, but no one knew. I was alone. After I woke up, I told my parents I fell out of a chair, which I did. Weeks later...
Thursday, October 19, 2023
Living in the Moment With Epilepsy
My name is Campbell. I am 18, and I suffer from tonic-clonic seizures. My first seizure was a complete surprise, and so was the epilepsy diagnosis...