Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.
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Friday, September 23, 2022
Epilepsy Makes Us Stronger
My name is Carrie. I am a 23-year-old living with epilepsy. I had my first seizure on November 16, 2015, when I was 16 years old. I came home from...
Thursday, September 15, 2022
Seizures Have Not Stopped Me
I started having myoclonic seizures around 14 years old. I didn't know what they were at the time, and I figured they would go away on their own if I...
Giving Back to Help Others on Their Journey
Our daughter Alex seemed normal at birth up until she began to crawl. That is when we noticed she wasn’t using her right arm or hand. We later found...
Alisa Kennedy Jones eJourney
“I refuse to let this determine if I have a good life or not.” Alisa was diagnosed with epilepsy when she was 40 years old. Having as much information...
My Story of Resilience
For me, epilepsy awareness is not simply learning about treatment, triggers, and statistics. It is also about the gritty experiences of individuals...
Battling Epilepsy as a Young Adult
My name is Brooke, I am 25 years old, and I have epilepsy. I am a Sunshine Committee Member through the Epilepsy Awareness Ambassador Program, and I...
Raising Epilepsy Awareness for My Sister and Others
My name is Henry Laudano. I'm sharing my story so that others know they are not alone in this fight against epilepsy. I’m in high school and have a...
Honoring the Memory of Kate
“What is the matter with Kate?” There was never an easy answer to that question. Our daughter Kate had her first tonic-clonic seizure unexpectedly in...
Epilepsy Is More Than Seizures
Midway through my freshman year, I remember noticing how my academic processing speed was slower and I kept zoning out of class. This was unusual for...
Johnson Family eJourney
“How do you not tell someone Sudden Unexpected Death in Epilepsy (SUDEP) is a possibility?” Cortney’s mother, Peggy Sherrell, was her best friend. As...