Hello can anyone help with this..my 20 year old daughter has seizures since she was 4yrs old
Every time she lets out a loud ‘woowoo’ scream and then straight after she will go flying forward like a bolt of lightning is going through her. It’s causing her awful injuries. Her Health team say it’s complex partial seizures followed (sometimes) by secondary generalised seizures. However the AEDs thry give her never work. I’m feeling she may be mis-diagnosed.
Does anyone else experience this and what diagnosis have you been told. It’s very soul destroying watching her suffer. She has them in clusters every 5/6 days