I'm 35 and have had absence seizures since I was a child. I was lucky that one was caught on my first EEG. It is managed with Lamictal and I haven't had one since 2017.
But this weekend I had a different experience. It started while I was at an arcade. I grew terribly sleepy. While going home I heard a loud buzz that wasn't there. Then I remember nothing but small bits and pieces. I sort of came to on Sunday. It turns out I was on a sort of autopilot on Saturday. I can only remember tiny pieces. I couldn't talk. I couldn't figure out how to get food or actually take medicine. I apparently took my clothes off (weird) and stared into space unresponsive for most of the day. On Sunday I came too in the afternoon. But I kept missing words. Was confused and could barely take a shower. The worst part was a terrible deja Vu. It lasted ALL DAY and was completely overwhelming. I wasn't able to articulate what was happening. On Monday I was finally able to see my neurologist. She specializes in seizures and is highly regarded in the field. But she completely dismissed me. Said it was likely psychological. That I wasn't having a seizure at the moment. That it might have something to do with seasonal depression... (What??). Said that I might have just been tired and needed to catch up on my sleep... to be honest it was devastating that she wouldn't even consider what I was saying to be real.
I have had 2 episodes almost exactly like this while a teenager. But she disregarded it and said I don't have any medical records from it so nothing she could do. Even though my sisters wrote their account. I kept pushing it. I know my body. This was neurological. So she ordered an eeg for the next day.
I was told I would hear back within 24 hours. Nope. After I called them a nurse said my EEG showed spikes that prove I'm epileptic (yeah, we already knew that). I asked if I should schedule a follow-up so we can figure out a treatment plan. The doctor again was dismissive. She told the nurse to tell me that I wasn't having a full blown seizure during the Eeg... Didn't offer any sort of follow up or med change. I pushed it with the nurse who said the doctor was gone for the day but she would talk to her.
I am scared it will happen again and cause permanent damage. From looking at studies people can have more than one form of epilepsy or it can change. I am beyond floored that I was just dismissed. I had taken time to write a timeline or my symptoms and have witnesses do the same. And I did a checklist of all my symptoms to help her pinpoint it... She acted like I am faking it for some bizarre reason.
I'm scared and don't understand why it is like pulling teeth to get basic care from a neurologist who is highly regarded for treating seizures.