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Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Guinevere | 09/2019 | 6 Comments

Hi. I have epilepsy. I'm young and about to graduate college. I don't have the ability to drive(epilepsy), and I am very poor, and I have no family to help me. I'm not sure how I...

Created By: Randy1990 | 09/2019 | 4 Comments

Hey

Created By: Twistdstofgrace | 09/2019 | 2 Comments

So about 5 days ago I had my first seizure in 7 years, out of work til I see a knee specialist and I am terrified they are going to report this incident to the dmv
Any advice to get through...

Created By: MotherTeresaK | 08/2019 | 2 Comments

Hi all. My 58y old brother was diagnosed with IGE after 3 grand mal seizures in 2 weeks. He's had additional seizures, on KEppra 1000mg twice daily and Dilantin 200mg twice daily. Still...

Created By: BobMarine | 08/2019 | 7 Comments

I did an overnight VEEG test at Yale in June, and didn't have any seizures. After I was there one night, the neurologist walks in with his entourage and in front of this crowd, tells me I...

Created By: Dancing Queen_5d2f880fa733e | 08/2019 | 1 Comment

Okay a little back ground first. I was diagnosed with JME after an EEG showed spike waves at 4hz. I get complex partials were I feel really intense vertigo, can't talk, jerks, automatics (...

Created By: Soren49 | 08/2019 | 3 Comments

Hello everyone,

a week ago my husband had his first tonic-clonic seizure. It has been legitimately the scariest, most anxious week of my life. They put him on 500mg of Kepra, and my whole...

Created By: melanieannecole | 08/2019 | 3 Comments

Hi everyone,

I am a 29 year old female and I had my first ever tonic clonic seizure on 7/21. I had an MRI and CT done immediately and both came back clear. My EEG showed I have epilepsy and...

Created By: Brooke.AM | 08/2019 | 1 Comment

Hello!

I am curious about whether or not anyone has experienced anything similar to this (and am very welcome to tips and tricks to quell it):

I've got juvenile myoclonic...

Created By: mizn | 08/2019 | 2 Comments

Hi there!

I've got a few questions about people who have JME and their experiences with AEDs, more specifically, with medication withdrawal.

A bit of background: I was diagnosed...

Created By: AmeizaSakurai | 08/2019 | 3 Comments

I'm starting college next month and I was given a suggestion to wear a seizure tracking device.

Does anyone know where you can get one? I heard there's a necklace or wrist watch...

Created By: AurturoJane | 08/2019 | 3 Comments

I usually find myself going bed late and waking up late and wasting my time without any healthy income, I've decided to start going to gym and I eventually did start training for 2 hours with...

Created By: wtclohis | 08/2019 | 1 Comment

I'm 27 and have a history of grand mal seizures, but I haven't had a seizure since 2013, when I was put on Kepra. Although I don't have seizures anymore, I still struggle with what...

Created By: Lisa0311 | 08/2019 | 4 Comments

Hi everone,

This is my first time posting on this forum. I have drug-resistant epilepsy with focal seizures which happen 3-5 times a week right now. I am on a combination of meds and my...

Created By: charper | 08/2019 | 3 Comments

Hi all,

I wanted to ask if anyone here remembers visions/hallucinations from their 'dream state'? If so, what were they like?

Created By: dtg | 08/2019 | 1 Comment

We our familiy that has struggled with epilepsy for 4 decades plus. Begiinning with myself at a young age. Reaaly didn't realize how much that impacted me, though I knew it did, until...

Created By: tmac1997 | 08/2019 | 1 Comment

I suffered with herpes encephalitis at around 2 years old and made an exceptional recovery. Over the years up until I was about 12 I had these deja by episodes that would make me feel really sick...

Created By: Mike Hamel | 07/2019 | 1 Comment

My name is Ken Koskela. When I was 13 years old, my family moved from the Chicago suburbs to a rural community near Galena, Illinois. This area is filled with small hills and so, near the start of...

Created By: father_5d42097ba4cac | 07/2019 | 1 Comment

Hi all,my 15yr old daughter was just diagnosed with juvenile myoclonic and though she is now 90% seizure free on this drug, her mood is one of someone angry and she also has tiredness. Whats the...

Created By: Kren10 | 07/2019 | 2 Comments

My wife and I have been together almost 3 years. She's 21 and I'm 20. We have a 1 year old together and a 4 year old just starting school (I'm her stepdad). My wife started having...

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