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The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Ever felt confused at random times?

Thu, 05/28/2020 - 22:29
I've had epilepsy for a long time now and I was wondering has anyone been in a situation where: (for instance) you're siting on the couch watching tv and all of a sudden you have no idea where you are or what you're doing but it only lasts like 1 min then you're back to normal? It happens to me every now and then.


Hi, Thank you for posting. It

Submitted by Anonymous on Fri, 2020-05-29 - 09:21
Hi, Thank you for posting. It’s important that you’readdressing this with your healthcare team and if you experience any changes in seizure types/frequency, symptoms, moods, behaviors or side effects. It may also be helpful to note how you were feeling before during and after these episodes you describe experiencing, to review with your doctor’s. My Seizure Diary can be used to organize health issues, track seizures, manage medications, develop seizure response plans, and more. . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000,

Hi, does this sound familiar

Submitted by figs on Sat, 2020-05-30 - 20:01
Hi, does this sound familiar to you? the link doesn't work, google 'jamais vu'

Yes, my daughter had this. 

Submitted by MamaofEnS2 on Tue, 2020-06-09 - 19:12
Yes, my daughter had this.  She was able to walk and talk, but some of what she said didn't make sense.  For example, during an episode, she called my husband an Island Person, and she said she had never been there before when she was at home.  She had a cluster of these episodes over a three day period.  Never before or after.  I don't know if they were seizures or what.  Yes, we talked about it with her neurologist.

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