Community Forum Archive

Hi,Thank you for posting. Safety is always the most important thing when it comes to an exercising for anyone of any ability level. It's important to make sure that you’re discussing your exercise routine with your healthcare team, who can help determine what may be best or safest for you. It’s also important that you’re addressing any changes in seizure types/frequency, side effects, symptoms, moods or behaviors. It’s also important to consider seasonal health and safety issues that people with seizures may have. Some people with epilepsy may be sensitive to heat, so staying cool is important. https://www.epilepsy.com/article/2018/7/summer-safety-people-seizures . Review steps to take to ensure that you're putting yourself in the safest position possible by visiting: https://www.epilepsy.com/living-epilepsy/healthy-living/fitness-and-exercise/safety-first-how-do-i-start-exercising . It may be helpful to record how you feel before, during and after you exercise. You may notice that some lifestyle habits such as lack of sleep, stress, dehydration or not eating well may have an impact on how you’re feeling and seizure frequency. https://www.epilepsy.com/learn/triggers-seizures. My Seizure Diary can help you track your triggers and your seizures, which can be shared with your healthcare team, They can help you identify or recognize any patterns, allowing you to modify (if needed) your treatment plan, behavior, or lifestyle appropriately. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline , or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates 

Thank you very much the the resources. I didnt realise this was so common. Have a great day this was a huge help.

Hey there, I used to get super sensitive to heat when I was on keppra, just couldn't handle how hot it felt. I found some things helped aside from the obvious drink water, avoid sunbathing etc. One thing that really helped was a product called "froggtoggs" or something like that, it's this workout towel thing that holds a ton of water without feeling wet and slowly evaporates to keep you cool, I just wet it and threw it over my shoulders before going out to be active in the sun.  Seemed to do a lot to take the edge off the flushing and heat intolerance. Good luck! And stay cool and safe this summer