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ktee,Thank you for sharing
Submitted by birdman on Fri, 2020-05-15 - 21:46
ktee,Thank you for sharing your experience. Your description sounds very much like what I described to my doctors as a child with the exception that I did not have the cold sensation. I still have the sour smell once in a while from a seizure. And the one thing that I appreciate reading is your difficulty in describing it as not unpleasant. The seizures that I have had have always been a bit scary, but there is that hard-to-describe element that they almost seem pleasant. I've had seizures all my life (50+yrs) and in more than forty years of trying to describe them to doctors I don't think I ever acknowledged that they sort of feel good. I've been afraid the doctors would think I'm crazy. But a good specialist who listens will understand it's possible to feel pleasure from a seizure. I'd say it's just as likely as any other emotion or sensation. Your description is great. Keep a diary of the seizures and go for that visit with a specialist.Michael