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Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: maurelle0808 | 12/2019 | 5 Comments

Hello,
This is hard for me to write about but I am in desperate need of help. I have seizures and when I come out of seizures (when I am still unconscious) I sometimes say and do...

Created By: Dizzyagain | 12/2019 | 3 Comments

At 59 I am new to having seizures. Most of mine have been tonic-clonic seizures with a few focal aware. I have recently figured out my aura. I get this butterfly feeling in my abdomen area. I am...

Created By: VickiLynn1029 | 12/2019 | 2 Comments

Hello:

I have a daughter (24).
She has intractable epilepsy.
We are looking for a thriving happy, community in which she can live safely.
She is a regional center client...

Created By: Hopeforus20 | 12/2019 | 3 Comments

Hello Everyone, have a question ? I have a son that has been having seizures for the last 10 years and for the last 5 years we have been without my husband . he passed away suddenly in 2014. I...

Created By: TRL | 12/2019 | 2 Comments

Hi. This is my 1st post...
At the age of 40, I had my first (observed) absence seizure. No one knew at that time what it was. I’ve had every test possible—MRI, EEG-in office &...

Created By: freebird_5c550fa7a309e | 12/2019 | 2 Comments

I've had focal seizures (and a few tonic-clonic) since I was 11, I'm now 23. Since they put me on Keppra when I was about 13, I've just felt, at best, like I'm in a fog, and at...

Created By: Fl0werz | 12/2019 | 4 Comments

I can't leave the house unintended because of my seizure frequency. The only other ONE person in my life, my wife, does not have car, license or reliable friends. The nearest bus stop is 7...

Created By: EmilyB_5df11112e72ac | 12/2019 | 2 Comments

Hi I have recently developed what I am 99% sure is TEMPORAL LOBE EPILEPSY

Can people with this please just tell me their experience of developing it, tests, treatments and progression?...

Created By: tammyg | 12/2019 | 1 Comment

I am not really sure if I’m having an absence or focal seizure. But different times throughout my day for example, sometimes just one eye will feel really heavy almost close while awake. Once in...

Created By: seamuspg | 12/2019 | 1 Comment

I am curious to hear anyone's experience with MDMA (as therapy) while taking lamotrigine. I am currently on 100mg of lamictal for "undiagnosed" partial focal seizures...(episodes of...

Created By: mpoly | 12/2019 | 2 Comments

Hi! I only have seizures in my sleep and as I sleep alone, I never really knew what happened, etc. However, I had a friend see one where I stood up out of bed and just dropped and had a seizure. I...

Created By: TMorners | 12/2019 | 3 Comments

I have had epilepsy for 13 years now (I’m 25) I suffer from tonic clonic seizures (that seem to happen 40 minutes after waking up) so I only know I’ve had one when I come round and I’m told....

Created By: mz-epi | 12/2019 | 1 Comment

Hello everyone, not sure if someone might have similar or saw similar symptoms and can help me a bit. I am almost 30 yrs old and had epilepsy since childhood but it was always moderate and never...

Created By: Bryan15012_5de8472639ce8 | 12/2019 | 3 Comments

Hey everyone, I’ve been living with Juvenile Myoclonic Epilepsy for about 13 years now. Seizures are under control but I’m really learning more about my condition. Things such as I should really...

Created By: Wayneor92 | 12/2019 | 7 Comments

Hi all, I have been out of work for nearly a year and a half now and its starting to effect me bringing depression on. I have passed 3 interviews for different companies but when filling in...

Created By: Questella | 11/2019 | 6 Comments

My bff has this and wants to work but also can't drive and I was wondering if anybody could throw any ideas at me for jobs that she could do that would work for her (SE Indiana area)...

Created By: Klsbo | 11/2019 | 2 Comments

I wear high socks because cold air that hits my ankles/feet triggers a seizure. Nothing serious, just an aura. I’m just looking for somebody that might have the same symptom?

Is it from a...

Created By: cfield80@gmail.com | 11/2019 | 2 Comments

I have MTLE (mesial temporal lobe epilepsy) and for a while now I've noticed having difficulty when speaking. For the longest time I had trouble "finding the right word", but who...

Created By: DubiousDan | 11/2019 | 1 Comment

Recently I've had a strange part of me where I just want to be alone in my home. I don't want to go anywhere outside of the house. I'm not afraid of it. But from what I'm...

Created By: alcian24 | 11/2019 | 4 Comments

Hi everyone. I am a black female who is almost 30 and this is my story.
I had panic and anxiety attacks for a couple of years now. I worry a lot so I assume that was causing these attacks....

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