Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: trogl | 12/2004 | 3 Comments

Here's what's happening.  I will be sitting at my desk working and I'll suddenly get sort of a "premonition of doom" (not quite that strong, maybe "something's gonna happen") then I get a bad...

Created By: akelton | 12/2004 | 0 Comments

My husband has JME. Recently, his seizures have increased in frequency dramatically. An MRI detected an arachnoid cyst. The neurologist does not appear to be concerned unless the upcoming video...

Created By: jopeart | 12/2004 | 42 Comments

I suffered a grand mal seizure a year ago, and following all the tests over the next six months, was diagnosed not to be epileptic. The diagnosis was clearly a relief but yet I'd still had a full...

Created By: jbo0402 | 12/2004 | 0 Comments

Often at night just before I fall asleep, my left arm will will contort itself into positions for which it is not normally intended. This happens during episodes which have been described as...

Created By: suzmom | 12/2004 | 12 Comments

Hello,I was just diagnosed (the day before Thanksgiving) with Complex Partial Seizures at a follow-up appt after a trip to the ER last month.The doc said "No driving" and I am crushed.  I...

Created By: painthorse | 12/2004 | 5 Comments

Everything feels broken my brain, and especially my spirit.  I have been off work since the end of August, not by choice, but because my employer told me to stay off untill the Dr. released me to...

Created By: ashkazz | 12/2004 | 32 Comments

At first i thought that i was crazy, but i came to this site and i almost cried because everything is true.  But is it possible to have both absence and complex partial epilepsy?  Is it...

Created By: karolwf | 12/2004 | 0 Comments

I do not get them as much as I used to but I never knew what it was. It is hard to explain but it usually occurred when I woke up and I would have this awful feeling in my stomach and would fight...

Created By: amandah_uk2000 | 12/2004 | 1 Comment

i have recently met someone who is so lovely, but tells me he has epilepsy. He has his last seizure in December where he hit his head quite badly.I have never some across epilepsy before and i am...

Created By: bbyrum | 11/2004 | 6 Comments

Ive been having my seizures for the past 3 years now. It is always the same sensation, length of time and recovery time. For the past year or so they have only been happening on Saturday or...

Created By: samdland | 11/2004 | 1 Comment

Any input would be great I would love to talk to someone who may have had or has similar seizures.When I was thirteen I was awakened one night by my left hand cramping and jerking uncontrollably,...

Created By: clunk1234567 | 11/2004 | 11 Comments

My boy just phoned me and said "what to you think about when you have a seizure?", i told him i'll tell him when i see him in a few weeks. Now i have no idea, does any of you guys know?Do we think...

Created By: jbo0402 | 11/2004 | 0 Comments

I am 37 years old and have been diagnosed with Multiple Sclerosis sinc 2001. I have been having seizure off and on for over a decade. I was recently told that I have two type of seizures,...

Created By: dmcamethyst | 11/2004 | 0 Comments

Has anyone ever experienced an injury in their sleep, but not remembering anything happening?  A few days ago, I woke up in the morning and attempted to sit up only to have a stabbing pain in my...

Created By: momof1 | 11/2004 | 3 Comments

  I have complex partial seizures which sometimes go on to become grand mal.  It is either during the seizure or right afterwards that I walk around, undress, talk or just do abnormal things.  I...

Created By: fenway | 11/2004 | 1 Comment

The fire department rescue unit brought me to the hospital twice.  They must automatically report such incidents to the state.  The state of NH automatically penalizes everyone $100.00 plus I must...

Created By: beautimouslove | 11/2004 | 13 Comments

hi all .. i am knew to the site.  i am a nursing student so i should know what is going on with myself, but i do not.  For 9 mo. i have been having these brain tingles that last for 10-60 sec....

Created By: edy_telephone | 11/2004 | 15 Comments

It is certainly difficult to live with epilepsy (at least here in Australia). I overwent the surgery but it didn't work. I don't blame anyone, of course. I am now taking Rivrotil, Lamictal and...

Created By: christine | 11/2004 | 3 Comments

My head injury occured when I was 16, but the seizures did not manifest themselves until much later in my life when I experienced extreme stress (ex:Shakespeare exam at University.)My academic...

Created By: karolwf | 11/2004 | 0 Comments

One of my greatest frustrations is that I find doctors that seem to think I need mental health when I am having a SPSI have been diagnosed with SPS since I was a child and have been treated off...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.