Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: raven9019 | 05/2020 | 1 Comment

Can anyone point me in the direction of a detailed article on how seizures work.. I find so many saying g what the are but none on how the actually work.

Created By: Mrs. Dyer | 05/2020 | 6 Comments

Hello,
I'm wondering if there's anyone else with epilipesy who has experienced the same thing as me. I was diagnosed with idiopathic epilipesy 6 months ago. I take keppra and...

Created By: Shalei | 05/2020 | 3 Comments

I've had epilepsy for 23 years and I STILL struggle with guilt. My family and friends are beyond amazing with working around my limitations even something as simple as me being the one to...

Created By: jeromerider | 05/2020 | 1 Comment

Hi all,

I was diagnosed with JME when I had violent twitches every morning from 18yo (2008) but wasn't under meds until I have a tonic-clonic seizure at 20 because of a messy young...

Created By: sophms | 05/2020 | 0 Comments

Hi! So I just watched a documentary about ALS (Lou Gehrig’s) and have a question. Do epileptics have a higher risk of getting this disease than the average person?

Thanks!

Created By: Drinkie | 04/2020 | 3 Comments

I'm only having nocturnal seizures. About two a month. Sometimes I'm extra tired the next day or two. Other times I wouldn't know if my wife didn't witness it.
Currently...

Created By: Stephkiki | 04/2020 | 2 Comments

Hello Everyone,
I recently joined this foundation, am from Nigeria. I had my first seizure in May 2018 (29yr) ever since then it’s been on and off depression for me. Am presently on 600mg...

Created By: USAFAlcon | 04/2020 | 1 Comment

Have any vets had epilepsy surgery and seen an increase in VA compensation as a result?

Last year I saw a significant change in my epilepsy, which led to two surgeries. The first was for...

Created By: RichieB | 04/2020 | 2 Comments

When i was 10 years old in 1990 i started getting a feeling like twitchy tingly electricity was shooting through my mouth. It was a seizure aura. The third time it happened i had a tonic clonic...

Created By: Lizm2020 | 04/2020 | 5 Comments

Im 44 now and for the last few years when i stretch -usually after waking so thankfully still laying down, often during or after yawning i drop into a fully conscious seizure-like thing where i...

Created By: hihellothere | 04/2020 | 3 Comments

hi i have been an epileptic since i was 9 and I am now 25. I have switched and altered my medicine many times growing up. Currently I am on Onfi 10mg twice a day and Keppra XR 500mg x4. I have...

Created By: Jessherter21 | 04/2020 | 5 Comments

Hi everyone! My name's Jess and I'm new here. I was diagnosed with epilepsy this past month after my second grand mal seizure while at work. They started me on 500 mg keppra twice a day...

Created By: IronStrong | 04/2020 | 1 Comment

So yesterday I went on a difficult hike and reality overdid it. When I got back home I spent time next to my bed on my knees doing my best to ward off seizure activity and trying not to fall...

Created By: katec1 | 04/2020 | 8 Comments

I want to scream this from the rooftops because my experience was so awful. Of course, everyone is different and their bodies react differently. However, withdrawal from onfi was THE most...

Created By: epimnu | 04/2020 | 2 Comments

Hii everyone, I belong to to India. This story belongs about my own son who has been suffering from epilepsy for about at the age of 2.5 years. When he was just the age of about 2.5years he has...

Created By: TMarie_5e8ea6819f110 | 04/2020 | 5 Comments

I have been having grand-mal seizures for about 15 years now. Recently I have been suffering from depression and have been seeking treatment from a licensed councillor. Three days ago I had a...

Created By: Link74 | 04/2020 | 6 Comments

Hi everyone. I have complex partial seizures centered in the temporal and parietal lobes.

I know all of my dietary triggers: caffeine (even chocolate chip cookies), particular non-...

Created By: Jclancy83 | 04/2020 | 2 Comments

Hi everyone. I’m new here. I’ve had epilepsy for almost 25 years now and I’ve never talked to anyone who has been awake for a grand mal seizure before. My seizures are controlled by Lamictal and...

Created By: dinulka | 04/2020 | 2 Comments

Hi,
I'm a junior majoring in Aerospace Engineering. I was diagnosed with epilepsy when I was 16 (I'm 23 now). Since then I've been on different medications, but my seizures...

Created By: Kellan | 04/2020 | 7 Comments

Hi,
I’ve had complex partial onset seizures for the last 10 years. Out of nowhere, the last few months about an hour or two after I wake up I start getting dizzy. After I take a 20-45 minute...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P