Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: itsmetaryn | 07/2019 | 1 Comment

I had electrical tingling like sensations for several hours last night coupled of with anxiety and fear. Not the same feeling as when your arm or leg falls asleep. I am now feeling very fatigued/...

Created By: Jennyv | 07/2019 | 1 Comment

Hello everyone!

I was diagnosed with complex partial seizures 2 years ago. I am currently between neurologists.

So for the past few months, I have been having constant pressure on...

Created By: Courtney3 | 07/2019 | 1 Comment

I will try to make this short and simple, but its complicated. I have minor nocturnal seizures, if I don't take meds. I was first on Tegretol (7yrs) then Lamictal (20yrs) and Zonisamide...

Created By: Jfreeman07 | 07/2019 | 1 Comment

I'm 30 and I was diagnosed with epilepsy about 6months ago...a little back story...I had encephalitis when I was about 8, grand mal seizure, life flighted, whole 9yards but after that got...

Created By: jaylow07$ | 07/2019 | 1 Comment

I am 46 years old I have been on the same job for about 20 years. I have been having seizures for the last five years. I have the kind where I actually pass completely out. I ignored it, I just...

Created By: jrsymike | 07/2019 | 0 Comments

has any one had laser ablation surgery at Mayo Clinic

Created By: jrsymike | 07/2019 | 1 Comment

anybody have laser ablation and had health insurance that covered procedure if not completely to some extent. im having a hard time finding any insurance company willing to cover procedure

Created By: OllieS | 07/2019 | 3 Comments

So I'm 31 years old, and two years ago, I had this very strange experience. I was about to leave to go to a friends house when suddenly, I couldn't remember where I was going or why. I...

Created By: 4generations | 07/2019 | 5 Comments

In 1978 I was put on Depekene, know known as Depakote ER. I have done great with a few break through seizures along the way. After falling on wet steps at work, hitting my head, my seizures have...

Created By: Jacksonreeves98 | 06/2019 | 1 Comment

My brother has recently had his VNS device removed which was first installed to help treat his epileptic seizures. The device which he lived with for years did not help his epilepsy in any way and...

Created By: LizzieaPR | 06/2019 | 2 Comments

My question is: when do you tell new people about your epilepsy? I put "dating" but really its kind of hard to me when to share that information because even when just meeting a new...

Created By: folkenaround | 06/2019 | 8 Comments

I cannot encourage you guys enough to look into the keto diet. Around two months ago I started a very strict version of the diet, entered ketosis about 10 days or so later and have not had a...

Created By: tinmaine | 06/2019 | 1 Comment

I have been on Keppra for 3.5 years. At the time of diagnosis and subsequent Rx for Keppra, I was 47 years old. I had LASIK about 15 years ago and my vision is still 20/20. And yes, I'm at...

Created By: Mervir1234 | 06/2019 | 3 Comments

Hello to anybody reading this

I was first diagnosed with epilepsy aged 7 and am now 20, which is was when I was officially diagnosed with focal epilepsy. and I have serious concerns for...

Created By: maayyycccciiiii | 06/2019 | 2 Comments

I am about to go into my senior year of high school and am starting to really think about life after I graduate.

I’ve always been a very independent person and couldn’t wait until I was...

Created By: eoviaho | 06/2019 | 1 Comment

Hello, i’m hoping someone can give me some info on amino acid supplements in the treatment of epilepsy, as well as taking these with medication (AED).

Im currently taking Zonisamide(awful...

Created By: mynamedoesntmatter | 05/2019 | 4 Comments

Hello everyone!
So in short, I have night time seizures but lately they have started to kick in just before I fall asleep.

I can feel a strong aura coming in and I get up, scared,...

Created By: katec1 | 05/2019 | 1 Comment

What is it like for you?

Created By: Emilyt99 | 05/2019 | 2 Comments

Hi, my name is Emily. I'm 32 yrs old and I was diagnosed with Grand Mal seizures at age 14. Lately I've been having panic attacks around other people and stress causes me to have...

Created By: Alwaysme | 05/2019 | 6 Comments

Hi everyone. Thought I would reach out to the online community and share in the hopes that someone may have a cure or better alternative for me and my seizures and perhaps learn from me as well....

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