Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: princesspeach_64 | 02/2020 | 0 Comments

Hi,
I was just wondering if anybody has any experiences of taking anti depressants alongside anti-epileptic medication. I began having focal seizures about four years ago and around this...

Created By: mar_sk | 02/2020 | 0 Comments

Hi all im 23 years old. I've had night terrors where I would scream loudly and wake up suddenly during my sleep since I was maybe 13-14 years old. 2 years ago we visited a neurologist and she...

Created By: tnorm | 02/2020 | 2 Comments

I’ve been out on a medical leave since December for something not related to epilepsy, and I’m returning back to work on Tuesday. I forgot to take my seizure medicine twice in a row and had a...

Created By: Saaim | 02/2020 | 3 Comments

Hi, I'm 21 years old and last year in February I lost my license. Previously I was seizure free and got my license back in 2018. I had it got an entire year before I lost it. I do believe it...

Created By: Iocando | 02/2020 | 3 Comments

Hi,

I've had epilepsy for three years now, I'm 26 years old. It's been very difficult with the dealing process. However, I think the biggest problem is handling the side...

Created By: Andrewvandyken | 02/2020 | 2 Comments

About once every 3 weeks my wife has an episode. She says she feels funny, dizzy and tired. Her eye lids flicker, her hands cramp up. She is usually semi-coherent during the episodes. They...

Created By: freethemind | 02/2020 | 4 Comments

Hi. I've had epilepsy for 10+ years now but still haven't learned to deal with the fear of having a seizure which leads to a seizure and more fear etc A vicious cycle. I have complex...

Created By: Ericburns | 02/2020 | 3 Comments

When I have seizures, I wake up confused for about a minute and my muscles are pretty sore. Well I just woke up feeling this way, where I forgot everything I did that day leading up to now (5:30pm...

Created By: Mystified2020 | 02/2020 | 1 Comment

About 3 weeks ago I had what i no2 understand to be a Tonic-Clonic (grand mal seizure). I had been using sleep medication, up to 100mg - 120mg of zolpidem(aka Ambien, Stilnox, etc). I decided to...

Created By: Johnom8 | 02/2020 | 1 Comment

Hey all
I had right temporal lobectomy for a cavernous malformation on my right temporal lobe.
10 yrs later I now can't handle stress and have explosive attacks of rage, my short...

Created By: pk | 02/2020 | 2 Comments

Hello,
I am suffering from epilepsy from the last 8 years.have been operated twice .i am on regular mediation of Torleva, Clobazam, and Tegrital. Although the frequency has decreased I am...

Created By: John doe_5b912717f074c | 02/2020 | 10 Comments

So I was diagnosed with Temporal Lobe Epilepsy back in 2011, right after graduating High School. After 9 years, I have come to realize that this medical condition has changed me (for the worst)....

Created By: Brec25 | 01/2020 | 1 Comment

Hi everyone for the past few years., I'm 26 I've been having this weird spacy feelings. I get sweaty and feel like nausea. Also I get a tingling sensation in my left side of my body. It...

Created By: gaspatio | 01/2020 | 2 Comments

Hi. My husband was diagnosed with epilepsy a several years ago; general and localized epilepsy. He started having seizures very shortly before we met, so we are basically learning about epilepsy...

Created By: AsgardianNerd | 01/2020 | 2 Comments

I recently had a grand mal that sent me into a spiral. I can't sleep, I don't want to eat, I want to scream all the time, and I both want to be alone and not alone. I'm anxious all...

Created By: Believe | 01/2020 | 1 Comment

I was diagnosed with Grand Mal seizures back in 2007, which are controlled by carbamazepine. Luckily, the only time I've had breakthrough seizures is when I am sick.

However, this...

Created By: Death | 01/2020 | 4 Comments

The least atlked about part of a seizure disoder , anyone experiance mental health problems with misdiagnosis

Created By: PrinceCharming1984 | 01/2020 | 3 Comments

Just curious what everyone else feels. I've had Petit mal since I was 5, I'm 35 now, had surgery 11 years ago but auras returned. For me its a sensation of electricity running from the...

Created By: AlexH1997 | 01/2020 | 1 Comment

Hi everyone!
I was diagnosed with epilepsy at 7 and became seizure free at around 13. I had absence seizure only and never really had any other type. Im currently 22 and recently started...

Created By: Jim Clayton | 01/2020 | 1 Comment

Hey everyone. First post. I’ll spare you the backstory, but to clarify I have juvenile myoclonic epilepsy...my wife does not. She is carrying our unborn child though. I have many concerns, but the...

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