Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Valmikspace | 02/2019 | 0 Comments

Offering a collection of stylish residences and expensive facility of 1 RK in Karanjade Panvel, this mesmerizing township truly delivers an opulent lifestyle to its residents. The 1 RK in...

Created By: SchirmerS | 02/2019 | 2 Comments

Hello all. Thank you in advance to anyone who leaves feedback.

I am a 24 year female, and was diagnosed with Epilepsy when I was 18 after experiencing 2 Grand Mal Seizures in my sleep on...

Created By: Iamwheezy0527 | 02/2019 | 3 Comments

Hello there, I've never had seizures up until about six-seven months ago and then they started out of nowhere. Still working with my doctor's to get it under control. I've had the...

Created By: JPurvis | 02/2019 | 0 Comments

December 23rd 2011, I had my first child at 18 years old. A few months later I had my very first seizure. It was a Clonic-tonic (grand mal) Seizure and it occurred only a couple hours from waking...

Created By: CX86 | 02/2019 | 0 Comments

Hey there everybody, I feel I should introduce myself. I've had this account for some time now, but never decided to post anything. I'm 32 years old, about 6 years ago, my ex-girlfriend...

Created By: katec1 | 02/2019 | 0 Comments

Doesnit go away? It just started a few days after bumping up to 20mg.

Created By: akdavies | 02/2019 | 2 Comments

Hi. I'm 38 y/o female who recently diagnosed with PNES. I was perfectly healthy, never been in a hospital until October 2017 when everything started. It started off as horrible migranes and...

Created By: msanders21989 | 02/2019 | 4 Comments

Most of my seziures occur at night, but they are regarded as uncontrolled, so I can’t drive. As a result of a grand maul seziure as an infant, I suffer from short term memory impairment, and...

Created By: Matty2020 | 02/2019 | 3 Comments

I feel a bit guilty posting this here today after reading so many other emotional stories and I realize that there is probably a 99 percent chance that any answer will be something like we cannot...

Created By: Evans789 | 02/2019 | 2 Comments

I am very self-conscious when it comes to my epilepsy, because when I was younger kids would call me “seizure boy”. The thing is though I only have seizures 2 to 3 times a year and they’re all in...

Created By: JMC7908 | 02/2019 | 0 Comments

In September of 2018 I was admitted into the hospital by my pulmonologist because I had been fighting pneumonia for over a year (it is now over 2 years)...I had my first seizure in April of 1995,...

Created By: Dwaller | 02/2019 | 2 Comments

Hi Guys.

Been a while. Im interested. If anyone experiences a prolonged aura or perhaps its a partial. Where you can function relatively normally. But it just makes you incredibly calm and...

Created By: arc | 02/2019 | 0 Comments

Hi - I am new here - M 48yrs currently - I had no issues till I was 47yrs and last year one night had a tonic clonic seizure, also started having partial seizures few days after (deja vu effect or...

Created By: Jbmbass4774_5c42d30dc7e67 | 02/2019 | 1 Comment

I'm 34 years old. I have medically-refractory bi-temporal epilepsy, Confirmed by a invasive EEG. I take Lamotrigine and Topamax. But it only stops the Grand mals. Also need a sleeping pill...

Created By: SprklyL1 | 02/2019 | 0 Comments

Has anyone tried it and has it worked for you? I tried to do it for about a month and i couldn’t do it even though it meant I could possibly drive. I had no motivation to do it, did anyone go...

Created By: Sunbro | 02/2019 | 1 Comment

Hi, I found a post from 2007 that pretty much described what I experience but I would like some more recent opinions.
So before I have a seizure I feel it coming its sort of like I'm...

Created By: freebird_5c550fa7a309e | 02/2019 | 3 Comments

I feel I have to tell someone who understands what my life is like, because no one around me does.

I was diagnosed with complex partial seizures at 11, in response to the Gardasil vaccine....

Created By: ready4change | 01/2019 | 3 Comments

I apologize in advance for the length of this post, but I feel like I should provide as clear of a picture as I can:

So starting from the beginning, I was diagnosed with JME at the...

Created By: amh | 01/2019 | 1 Comment

Trying to get answers. My epileptologist is being very stingy with what he tells me. I am scheduled for an EMU stay in two weeks. Referral if for pre-surgical work up. But my epileptologist...

Created By: Joannarturner | 01/2019 | 2 Comments

Has anyone been successful applying and being approved for disability? I am going through the process right now. Its very stressful and any advice or help to know what is ahead of me would be...

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