Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: RacerX35 | 06/2020 | 0 Comments

Well I am now a part of the static's of a married man with epilepsy. I am now in the process of divorce. Not only dealing with my seizures over all this time, but being the primary "...

Created By: elizabeth.goldberg@gmail.com | 06/2020 | 0 Comments

Hey all - I just started XCOPRI as a new adjunct mediation. (I'm already on lamotrigine and onfi - my seizures are probably controlled ~85%?) I'm 35. I know it's a really new drug,...

Created By: MamaofEnS2 | 06/2020 | 2 Comments

My daughter went 11 years seizure free.No meds for 9 years. She may have had a seizure that caused an accident last year. The entire family's auto insurance has been denied. The doctor...

Created By: hellothere | 06/2020 | 2 Comments

Hi. Im 39 male, had Epilepsy since age of 11 and have been on SV since i was about 14, im on a high dose 1200mg a day.

I have a feeling it is making me numb and muting my emotions.

...

Created By: alib96 | 06/2020 | 2 Comments

Hello there! We are a group of students from Italy trying to make a small contribution to the research field of epilepsy. We are focusing on a particular problem related to epilepsy: people’s...

Created By: Yuesenia 045 | 06/2020 | 1 Comment

My epilepsy started 10 year old seizures I'm 32 year old every time I have time I have seizure hurt me alot people ask me alot that they understand me on my health and tell u don't...

Created By: Dnedzel | 06/2020 | 12 Comments

I just wanted to share my experience with the anti-seizure medication Keppra. I am not a doctor and you may have a very different experience with the drug, but I wanted to share my experience...

Created By: awesum | 06/2020 | 2 Comments

Hi,

I recently was on medicinal steroids which resulted in me catching a cold for 2 weeks which I couldn't fight due to the steroids and then playing on a VR headset which resulted in...

Created By: arstef90 | 05/2020 | 2 Comments

Hi everyone, I am new to this forum but I have been living with epilepsy for 20 years. Over the past two years, my condition has declined somewhat, and I am having frustrating new symptoms that I...

Created By: fallingstarz | 05/2020 | 3 Comments

I've had epilepsy for a long time now and I was wondering has anyone been in a situation where: (for instance) you're siting on the couch watching tv and all of a sudden you have no idea...

Created By: Dnedzel | 05/2020 | 5 Comments

I was assigned a neurologist after I had multiple tonic-clonic seizures 8 months after surgery for a meningioma. While she has been ok, I haven't felt she responded to my questions about...

Created By: Dnedzel | 05/2020 | 3 Comments

I was assigned a neurologist after I had multiple tonic-clonic seizures 8 months after surgery for a meningioma. While she has been ok, I haven't felt she responded to my questions about...

Created By: tpod87 | 05/2020 | 2 Comments

Hi there
I’m a 33 year old female, who was diagnosed with JME at age 19. I started lamictal then and haven’t stopped. I have been relatively seizure free since, with the exception of few...

Created By: mdenbigh | 05/2020 | 3 Comments

I was a third generation employee at ExxonMobil Corporation with a combined service of 70+ years at the Baytown, Texas refinery. I personally worked for ExxonMobil Corporation for just short of 5...

Created By: seamuspg | 05/2020 | 6 Comments

One year ago, I was diagnosed with Temporal Lobe Epilepsy. Prior to starting Lamictal (200mg) I experienced deja-vu / sense of familiarity / dual consciousness episodes which lasted between 3-6...

Created By: Mswanson502 | 05/2020 | 1 Comment

Do any of you ever have seizures where you feel like you're being zapped, tazed, shocked, etc? It's like a sharp pins and needles sensation.

Created By: ktee | 05/2020 | 2 Comments

Hello to everyone

As I said in my introduction; I'm French so I may make some mistake in my writing. Please be kind to me :-)

Well; I have to say I started experienced this...

Created By: Windart | 05/2020 | 2 Comments

Hi everyone!
I'm a 21yo old guy from Romania (well, sorry for my english)
At the age of 7 I suffered 3 grand mal seizure at few months distance (all in sleep). I received...

Created By: Dnedzel | 05/2020 | 8 Comments

I had my first seizure at age 60, this past April 16th, 8 months after meningioma surgery which the surgeon says went very well. He was surprised that I had a seizure, but said that the scare...

Created By: Brenden | 05/2020 | 3 Comments

I live in easternWashington state and it can fluctuate very rapidly between cold and hot weather. One day the house will be kept warm on a cold day and cool on a hot day. Going in and out of the...

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