Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Meggc6898 | 04/2019 | 0 Comments

has anyone had any problems with pre-workout before the gym? I'm a college student and I like to stay athletic so I've been trying to get into more intense workouts. I bought pre workout...

Created By: George1356 | 04/2019 | 0 Comments

Hi all, do you have any advise for feeling weak and light headed. I'm trying to keep strong, but have just reduced meds as it was a big high, now feeling worse. thanks

Created By: George1356 | 04/2019 | 2 Comments

Hi all, I had a grand mal seizure just over a month ago and I am still feeling hazy. Can anyone relate to this length of time, it's been so long......

Created By: cinthugg_ | 04/2019 | 1 Comment

Hi my names cinthya, i've been dealing with seizures since i was 15 i am now 22 and till this day i have not been diagnosed with epilepsy. I'm on keppra 750mg started off on dilantin at...

Created By: howarthphil1 | 04/2019 | 4 Comments

Hello everyone,

I have just recently graduated from university and I am 11 years grand mal seizure free. However, I have been suffering from smaller seizures which are brought on when I...

Created By: aussiezoe | 04/2019 | 0 Comments

I'm female, and 26. I was diagnosed with epilepsy at 12, and at 24, was diagnosed with Multiple sclerosis.
I'm just wondering if there's anyone out there just like me?

Created By: Bret | 04/2019 | 1 Comment

if so, does it affect your performance, and how? It seems to me that having been cursed with this, its balanced out with creativity and the ability to create and put in tangible form what's...

Created By: steveinsatx2263 | 04/2019 | 2 Comments

Do any of you know that's smoking marijuana can bring on a seizure? I don't know if medically it is been proven or not but I know from experience that this is a fact. I have a roommate...

Created By: jimmieD | 04/2019 | 3 Comments

I was just curious to know what others experience during their auras

Created By: Mamacita2428 | 04/2019 | 1 Comment

Hello I was just curious how the stay at home moms deal with Epilepsy. I've had seizures since I was 5 months old. Before I had kids I had them multiple times a day etc. When I started having...

Created By: Alta | 04/2019 | 0 Comments

Hi there,
I have seizures more than half the month. On my bad days I try to just stay near/on the couch. I’m trying to figure out if anyone else deals with this if they have a kit or...

Created By: Thebrunette | 04/2019 | 1 Comment

I'll be traveling around Europe soon but for future trips want to be gone for 3-6 months or longer. My insurance won't allow a vacation override. I can only get a 30 days supply 1 time...

Created By: TonyaB | 04/2019 | 1 Comment

Can anyone explain to me what Transient Alteration Awareness is? I just don't understand what it means. I was diagnosed with it, but can't find anything on it.

Created By: Dv8sv8 | 04/2019 | 2 Comments

Hi everyone just looking for some advice 7 or so years ago i was diagnosed with epilepsy for having abscence seizures. A couple of weeks ago i had my first convulsive seizure. Im still waiting to...

Created By: swingbatta25 | 03/2019 | 2 Comments

Hey everyone. My name is Ally. I will give you a little bit of my story, because I need some opinions. I am 22, on April 20th I will have had epilepsy for 9 years, being diagnosed when I was only...

Created By: katec1 | 03/2019 | 2 Comments

This med is messing me all up. Im off of it a week now and because of the long half life it took about 3 days for the withdrawals to hit. I tapered down and when I got to 5mg I stopped after a...

Created By: Nat19910732 | 03/2019 | 1 Comment

I have had No Aura No Photosensitive Epilepsy since I was 10months old due to encathelightes been bullied at both primary and secondary school and now I’m finding it hard to get a job in retail...

Created By: eoviaho | 03/2019 | 1 Comment

Hello, iv'e been taking zonisamide (100mg) for the past few months and recently my auras slowly started to come back (usually in the mornings). I find that some days i'm feeling awful as...

Created By: Mollyow | 03/2019 | 2 Comments

I had my first grand mal seizure out of nowhere when I was 15, I’d never had any previous medical issues. The doctor I was under was rubbish and kept saying it was hormonal I’d have seizures all...

Created By: Reminder onibokun | 03/2019 | 1 Comment

What to do when no one Believesyou so you cannot get care and help from no one resources

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