Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Billc | 10/2019 | 3 Comments

I just saw my neurologist for the first time. He told me that I was unconscious when the EMTs came and when I came to I was fighting them because I thought someone was after me. I told him I had...

Created By: davo-c137 | 10/2019 | 1 Comment

I'm relatively new to epilepsy as it only began after severe head trauma 3 years ago. I've been lucky in that all my seizures have been at home in the mornings, mostly just after waking...

Created By: Celena | 10/2019 | 2 Comments

I need your help. My wife is recently 30 years old and 3 years ago she had her first seizure (I thought it was simply fainting). From that time she had 18 seizures. I need to write a lot here to...

Created By: bretruss | 10/2019 | 1 Comment

When I have a seizure coming on I notice my thinking is slow, vision is hazzy/ aura, my left arm and leg sometimes becomes very weak and at times becomes limp meaning I can't move them. I get...

Created By: delphinium | 10/2019 | 1 Comment

I got a medic alert tattoo and it is wonderful. The jewelry is ugly and the chains kept breaking so I solved the whole problem and it's pretty. The tattoo is on my left arm, above my watch. I...

Created By: Newyorkcita2 | 10/2019 | 2 Comments

I just had an appointment at the eye doctor last week and after the assistants had me do some testing where I move my eyes to follow an object, I felt myself have an aura. My auras are typically a...

Created By: Lsteffey | 10/2019 | 5 Comments

I am a 30 year old mother of a 3 year old and 1 year old. About a month ago I had a grand mal seizure that scared my children and husband to death. I've never had any medical issues and it...

Created By: specialneeds | 10/2019 | 2 Comments

Hi,

I have a 21 year old that has a variety of special needs. These include autism, anxiety, LD, tourette's syndrome, OCD, and now seizures.
Prior to the seizures she had a...

Created By: LadyNoc | 10/2019 | 0 Comments

Ive had seizures in my sleep since i was in 3rd or 4rd grade. I am now 37yrs old, been on Tegretol XR since then. The medication controls my seizures well, but if im exhuasted with little sleep I...

Created By: abc1212 | 09/2019 | 2 Comments

My daughter is 25. She started having seizures at 1 yo. She is taking zonegran which has worked since she was 15 with only one breakthrough seizure at 17. No seizures since that time. She had...

Created By: Rachel09 | 09/2019 | 0 Comments

Head

Created By: HannahRH | 09/2019 | 3 Comments

Trying to post here but it keeps saying "Sorry invalid content". Just seeing if the fault is in the message...

Created By: Johnnyb_5b40c90bec472 | 09/2019 | 2 Comments

I need help. I've been more of a public setting now that I have a job at a Marijuana Dispensary (of all places) Well I've been having SPS/auras and I get this crazy feeling I've...

Created By: Romeo100 | 09/2019 | 2 Comments

Hello everyone.
I have simple partial seizures. I would like to know if a chronic painless tooth abscess can make my seizures more frequent and more resistant to treat?

I have a...

Created By: Wayneor92 | 09/2019 | 9 Comments

Hi all,
Im a 26 year old male that has had Epilepsy since February 2016. I had my first seizure in work while a manager of burger king so as you can imagine this was in a kitchen with...

Created By: adotb | 09/2019 | 2 Comments

Epilepsy f*cks my life, I have had it since I was a little kid ~4 years (I'm 28 today). My life have sucked whole life, my epilepsy have always been a problem with everything, but I was young...

Created By: Moon_5d8010e260abe | 09/2019 | 3 Comments

Hi. My name is Juliana. I am 24 and have had epilepsy since I was 6. I have epilepsy in the form of twitches and zoning out during the day and once a year gran mals at night that cause me to sleep...

Created By: Guinevere | 09/2019 | 6 Comments

Hi. I have epilepsy. I'm young and about to graduate college. I don't have the ability to drive(epilepsy), and I am very poor, and I have no family to help me. I'm not sure how I...

Created By: Randy1990 | 09/2019 | 4 Comments

Hey

Created By: Twistdstofgrace | 09/2019 | 2 Comments

So about 5 days ago I had my first seizure in 7 years, out of work til I see a knee specialist and I am terrified they are going to report this incident to the dmv
Any advice to get through...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline