Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Dnedzel | 06/2020 | 4 Comments

I just wanted to share my experience with the anti-seizure medication Keppra. I am not a doctor and you may have a very different experience with the drug, but I wanted to share my experience...

Created By: awesum | 06/2020 | 1 Comment

Hi,

I recently was on medicinal steroids which resulted in me catching a cold for 2 weeks which I couldn't fight due to the steroids and then playing on a VR headset which resulted in...

Created By: arstef90 | 05/2020 | 1 Comment

Hi everyone, I am new to this forum but I have been living with epilepsy for 20 years. Over the past two years, my condition has declined somewhat, and I am having frustrating new symptoms that I...

Created By: fallingstarz | 05/2020 | 2 Comments

I've had epilepsy for a long time now and I was wondering has anyone been in a situation where: (for instance) you're siting on the couch watching tv and all of a sudden you have no idea...

Created By: Dnedzel | 05/2020 | 4 Comments

I was assigned a neurologist after I had multiple tonic-clonic seizures 8 months after surgery for a meningioma. While she has been ok, I haven't felt she responded to my questions about...

Created By: Dnedzel | 05/2020 | 3 Comments

I was assigned a neurologist after I had multiple tonic-clonic seizures 8 months after surgery for a meningioma. While she has been ok, I haven't felt she responded to my questions about...

Created By: tpod87 | 05/2020 | 2 Comments

Hi there
I’m a 33 year old female, who was diagnosed with JME at age 19. I started lamictal then and haven’t stopped. I have been relatively seizure free since, with the exception of few...

Created By: mdenbigh | 05/2020 | 3 Comments

I was a third generation employee at ExxonMobil Corporation with a combined service of 70+ years at the Baytown, Texas refinery. I personally worked for ExxonMobil Corporation for just short of 5...

Created By: seamuspg | 05/2020 | 6 Comments

One year ago, I was diagnosed with Temporal Lobe Epilepsy. Prior to starting Lamictal (200mg) I experienced deja-vu / sense of familiarity / dual consciousness episodes which lasted between 3-6...

Created By: Mswanson502 | 05/2020 | 1 Comment

Do any of you ever have seizures where you feel like you're being zapped, tazed, shocked, etc? It's like a sharp pins and needles sensation.

Created By: ktee | 05/2020 | 2 Comments

Hello to everyone

As I said in my introduction; I'm French so I may make some mistake in my writing. Please be kind to me :-)

Well; I have to say I started experienced this...

Created By: Windart | 05/2020 | 1 Comment

Hi everyone!
I'm a 21yo old guy from Romania (well, sorry for my english)
At the age of 7 I suffered 3 grand mal seizure at few months distance (all in sleep). I received...

Created By: Dnedzel | 05/2020 | 7 Comments

I had my first seizure at age 60, this past April 16th, 8 months after meningioma surgery which the surgeon says went very well. He was surprised that I had a seizure, but said that the scare...

Created By: Brenden | 05/2020 | 3 Comments

I live in easternWashington state and it can fluctuate very rapidly between cold and hot weather. One day the house will be kept warm on a cold day and cool on a hot day. Going in and out of the...

Created By: raven9019 | 05/2020 | 1 Comment

Can anyone point me in the direction of a detailed article on how seizures work.. I find so many saying g what the are but none on how the actually work.

Created By: Mrs. Dyer | 05/2020 | 5 Comments

Hello,
I'm wondering if there's anyone else with epilipesy who has experienced the same thing as me. I was diagnosed with idiopathic epilipesy 6 months ago. I take keppra and...

Created By: Shalei | 05/2020 | 3 Comments

I've had epilepsy for 23 years and I STILL struggle with guilt. My family and friends are beyond amazing with working around my limitations even something as simple as me being the one to...

Created By: jeromerider | 05/2020 | 1 Comment

Hi all,

I was diagnosed with JME when I had violent twitches every morning from 18yo (2008) but wasn't under meds until I have a tonic-clonic seizure at 20 because of a messy young...

Created By: sophms | 05/2020 | 0 Comments

Hi! So I just watched a documentary about ALS (Lou Gehrig’s) and have a question. Do epileptics have a higher risk of getting this disease than the average person?

Thanks!

Created By: Drinkie | 04/2020 | 3 Comments

I'm only having nocturnal seizures. About two a month. Sometimes I'm extra tired the next day or two. Other times I wouldn't know if my wife didn't witness it.
Currently...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline