Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Epilepsy Does Not Define You

11/2018 | 6 Comments

It was the start of my senior year in college and one evening when I just got out of my car I had a seizure. God was looking after me on that one...
epilepsy

11/2018 | 10 Comments

Hello, I'm 26 and I was diagnosed with epilepsy 3 years ago. I'm not sure what kind I have, as I don't have auras, and I don't really know often they...
Epilepsy

10/2018 | 1 Comments

My names mariah and I’m 24 and I was diagnosed with Juvelille Myoclonic Epilepsy when I was about 15. (JME) I have the absence seizures where I just...
Fatigue and shortness of breath

10/2018 | 1 Comments

Hello there. I am a 29 year female with uncontrolled epilepsy. I have been having 1 grand mal seizure about every 2 weeks for the past two months. I...
My name is Chaz and here is my story

10/2018 | 1 Comments

Well I guess I'll start off with my name is Chaz I live in Dallas Texas and am 30 years old. I have had seizures since my 17th birthday. I have had...
Anyone have any relatable symptoms?

10/2018 | 5 Comments

I am going to try and explain these weird occurrences I’ve been having and I’m trying to see if anyone else can explain or maybe has an idea of what’s...
Trying to deal at 36!

10/2018 | 1 Comments

I have suffered from severe migraines and blackouts since I was 14 years old. September 2014, I went through a very drastic and emotionally draining...
Can a diagnosis be wrong ?

10/2018 | 13 Comments

Hi I'm actually in the UK but can't seem to find a UK specific forum so if anyone knows of one let me know :) I've been diagnosed with epilepsy...
7 Day Video EEG

10/2018 | 4 Comments

Hello everyone! I’m scheduled to have a VEEG in 2weeks and I’m freaking out. Can anyone share their experience and give any advice? Anything at all...
Never giving Up

10/2018 | 2 Comments

I am controlled. People have always been trying not to let me do things but alot of people do not even know I have a problem. I have not let seizures...
Post Concussive Syndrome and Episodes

10/2018 | 5 Comments

This is my first post here, so please forgive any possible mistakes or lack of site specific etiquette. I was involved in a car accident a few months...
Uncontrolled Seizures

10/2018 | 2 Comments

I have just been diagnosed with intractable seizures after having epilepsy surgery five years ago. It's in two parts on my brain. I just wanted to get...
coping with my epilepsy

10/2018 | 8 Comments

Hi my name is Mike and i have had Epilepsy for many years and sadly in my case its getting worse .Right now i am on my 8th change of medication and in...
Tired of This

10/2018 | 8 Comments

I'm a young adult, 19, but I was diagnosed with epilepsy 4 years ago, and I've had a total of only 3 seizures. I know it's not as bad as many of you...
Workplace remodel (trippy carpet)

10/2018 | 0 Comments

My work has recently installed crazy lined carpet, in thin highlighter-bold colors. And they made it worse by making the squares misaligned,giving the...
Confused

10/2018 | 0 Comments

I have been dealing with my E scents I was 12.... When I was 23 we found that 800 mg of Lanictal works wonders...I have petIt mal and grand mal...I...
Signs of seizures in sleep

10/2018 | 2 Comments

Hi, so I have been living with epilepsy since I was 16. I have photosensitive epilepsy grabx mal seizures when I am awake and when I am asleep I have...

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