Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Employer Communication

02/2019 | 3 Comments

I have been struggling with adult on-set epilepsy and intractable seizures (complex partial) for 10 years now. First tests showed that the on-set of...
Struggling With Medication Switch

02/2019 | 0 Comments

I've been epileptic since age 10 and am now in my 40s and have seen a lot (5 or 6 medications and almost every type of seizure). Have been under...
Anthem Blue Cross

02/2019 | 3 Comments

I just started an insurance plan with Anthem Blue Cross. I also just started taking Lamitrogine XR. A 30-day refill came in the mail today and I was...
Seizure with flu like illness

02/2019 | 3 Comments

Hello all just wondered if anyone has experienced similar. I had been seizure free for over 2 years well controlled. I have JME and take lamotrigine...
The Nights I Can't Sleep At All

02/2019 | 8 Comments

They're never intentional. Just every once in a while I lay in bed unable to sleep. Most of the time, due to racing thoughts that range from my cat...
Is it discrimination?

02/2019 | 5 Comments

Hello there, I've never had seizures up until about six-seven months ago and then they started out of nowhere. Still working with my doctor's to get...
My Story

02/2019 | 1 Comments

December 23rd 2011, I had my first child at 18 years old. A few months later I had my very first seizure. It was a Clonic-tonic (grand mal) Seizure...
Hello From Michigan

02/2019 | 0 Comments

Hey there everybody, I feel I should introduce myself. I've had this account for some time now, but never decided to post anything. I'm 32 years old...
Onfi depression

02/2019 | 0 Comments

Doesnit go away? It just started a few days after bumping up to 20mg.
Newly Diagnosis

02/2019 | 2 Comments

Hi. I'm 38 y/o female who recently diagnosed with PNES. I was perfectly healthy, never been in a hospital until October 2017 when everything started...
Finding employment

02/2019 | 6 Comments

Most of my seziures occur at night, but they are regarded as uncontrolled, so I can’t drive. As a result of a grand maul seziure as an infant, I...
Justice?

02/2019 | 3 Comments

I feel a bit guilty posting this here today after reading so many other emotional stories and I realize that there is probably a 99 percent chance...
When do I tell someone about my epilepsy?

02/2019 | 3 Comments

I am very self-conscious when it comes to my epilepsy, because when I was younger kids would call me “seizure boy”. The thing is though I only have...
Calm and focused

02/2019 | 4 Comments

Hi Guys. Been a while. Im interested. If anyone experiences a prolonged aura or perhaps its a partial. Where you can function relatively normally. But...
Monthly or bi monthly periodic Seizures

02/2019 | 0 Comments

Hi - I am new here - M 48yrs currently - I had no issues till I was 47yrs and last year one night had a tonic clonic seizure, also started having...
What do I do

02/2019 | 1 Comments

I'm 34 years old. I have medically-refractory bi-temporal epilepsy, Confirmed by a invasive EEG. I take Lamotrigine and Topamax. But it only stops the...
Modified Atkins diet

02/2019 | 0 Comments

Has anyone tried it and has it worked for you? I tried to do it for about a month and i couldn’t do it even though it meant I could possibly drive. I...

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