The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Uncontrolled Seizures

Mon, 10/08/2018 - 22:45
I have just been diagnosed with intractable seizures after having epilepsy surgery five years ago. It's in two parts on my brain. I just wanted to get some advice on what to expect.

Comments

Well I have had epilepsy for

Submitted by wmi3@aol.com on Thu, 2018-10-11 - 10:39
Well I have had epilepsy for 21 years and had countless different medications which up to now have not worked .However I have never had surgery and I doubt I would ever be prepared to have it so I don't really know what you can expect .One things for sure and that is epilepsy has different affects on different people whether they are just on medication or have surgery .

Intractable epilepsy has

Submitted by just_joe on Fri, 2018-10-12 - 13:17
Intractable epilepsy has several different names. It can also be uncontrolled epilepsy or drug resstant epilepsy. If you have been treated with 2 appropriate anti-seizure mediations they will say you have intractable epilepsy. My epilepsy is considered ontrolled but I still have a seizure avery 5-14 days. My seizures today are nothing like those I had earlier n my life. I cn have  a seizure right infront of you and you wouldn't know about it. Work with your neurologist and you and Doc might get your seizures down to where mine are. Mine only last a few seconds.I hope this helpsJoe

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.