Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Adult children

07/2018 | 1 Comments

I'm new here, so thank you all for any feedback. My son was diagnosed at age 13 (he's now 49 - yes I'm old) He has been on Lamictal and Depakote for...
New to epilepsy

06/2018 | 1 Comments

I was diagnosed last July with generalized epilepsy after a 24 hour EEG showed seizure activity. For years I had black out spells where I would lose...
Heart disease and seizures

06/2018 | 1 Comments

Hi- I have epilepsy, with partial onset tonic-clonic seizures. My seizures have always been infrequent, and as they tended to cluster around my period...
What Kind of Seizures Am I Having?

06/2018 | 4 Comments

Hi- I'm an old guy (65) and for a couple of months now, I have multiple incidents of seizure-like activity every night. My personal physician thought...
Advice, Care, and Venting

06/2018 | 4 Comments

Hey, I'm 18, relatively new. I've been diagnosed with Absence Seizures around May 18th, they're pretty late but I started getting small ones around 16...
Epilepsy and eating disiorder

06/2018 | 0 Comments

I am a 48 year old male. My epilepsy has been under control now for a while,however I have just been recently diagnosed with anorexia nervosa. I have...
Ecstatic seizures

06/2018 | 1 Comments

Ecstatic seizures has anyone had them ? what have your experiences been when have them? i have had a few now when the first one happened i had it in...
Epilepsy and adderall

06/2018 | 3 Comments

So I have had epilepsy for 5 years and was prescribed lamictal. For the past year I have been taking lamictal AND topimax. Like many others I have...
Epidiolex

06/2018 | 2 Comments

Hi, I've heard about a new medication coming out called Epidiolex. Does anyone know if this will treat partial seizures?
Triggers

06/2018 | 4 Comments

Hey I'm Kat I've had epilepsy since I was 20, I am now 26. I went 4 years with no episodes and was able to work full time. Last Nov 2017 I started...
Can’t drive

06/2018 | 6 Comments

Does anyone else get frustrated not being able to drive because of seizures. I’m 35 and have been told I’ll never be able to. Granted I try to look on...
Did I have a seizure?

06/2018 | 3 Comments

This morning, (June 3rd, 2018 at approximately 7:30) I got up after staying up very late the previous night. Tired, I slowly attempted to start making...
Blue led lights

06/2018 | 0 Comments

Blue lights can trigger a seizure for me. Ex police lights and much more importantly for me are lights during a dance show. My daughter dances and the...
mutation on the SCN3A gene

05/2018 | 4 Comments

hello, My daughter (5 months old) has a mutation on the SCN3A gene. this mutation cause her to suffer from epilepsy and we haven't found yet the best...

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