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living with it
Tue, 12/07/2004 - 14:43At first i thought that i was crazy, but i came to this site and i almost cried because everything is true. But is it possible to have both absence and complex partial epilepsy? Is it possible to have several types at once?
I just stare, and sometimes i almost drool. but with me, i am sort of aware of everything that goes on. i hear things, but i can't respond, like my whole being does'nt have the energy to respond, so i sort of can't move. but on a few occassions, i started to rock back and forth. I thought that i was crazy because my doctors gave me an EEG, but nothing was abnormal. But they said that it may have been that i just wasn't having a seizure at that time. My head tips most times rolls to my left and my eyes roll up and to the left also. If i'm standing, i do feel weak, but i haven't fell yet. I mostly just stand there until it passes. But the bad ones, fortunatley, have only happened while sitting. But mostly i feel that i will have one soon, usually in the morning, I feel wierd. I can;t concentrate. my thoughts are sometimes confused. I rememeber one time all of a sudden my brain felt like every neruon was turned on and on fire. It was like i was thinking of everything and nothing at the same time. my thoughts were at hyper-drive, and then i had this irresistable urge to take off running as fast as i could. i don't know what that was, but it was before my diagnosis. i am so glad that i found this site, because i have longed to just talk to people who understand what i go through, and it is also very reassuring that i am not crazy.
Comments
RE: RE: RE: RE: RE: RE: RE: RE: RE: living with it
Submitted by LeeMc on Tue, 2004-12-07 - 13:29
Thank you all for the kind words. I wish my self-esteem and confidence were that on target every minute of every day - but the reality is that sometimes things do get the better of me! I just promised myself a long time ago that I would never let this thing get me down. The E is actually easier to live with then the addictive personality!!!
You are all a source of strength to me and to each other. Finding this forum has been a wonderful thing for me and is allowing me to learn at the same time I contribute. You are all helping me in my journey to the next place in life - I hope I am of assistance as well.
Later...........................Lee
Thank you all for the kind words. I wish my self-esteem and confidence were that on target every minute of every day - but the reality is that sometimes things do get the better of me! I just promised myself a long time ago that I would never let this thing get me down. The E is actually easier to live with then the addictive personality!!!
You are all a source of strength to me and to each other. Finding this forum has been a wonderful thing for me and is allowing me to learn at the same time I contribute. You are all helping me in my journey to the next place in life - I hope I am of assistance as well.
Later...........................Lee
RE: RE: RE: RE: RE: RE: RE: RE: RE: RE: living with it
Submitted by monalisa on Tue, 2004-12-07 - 14:43
Lee.
Things can get the better of all of us .The addictive personality at least you are aware of,and realise it very much contributes to who, and what you are.What I mean is that you don't let it stand in your way of going about your life.In that life is dealing with E,and acceptance of that.If I or any of the others help you along that journey,then I'm certain we are grateful.What I am grateful for is that you share, and tell us what and how it is for you.I hope that I do the same, and that we dance together on that journey and we keep up with the music.
Lee.
Things can get the better of all of us .The addictive personality at least you are aware of,and realise it very much contributes to who, and what you are.What I mean is that you don't let it stand in your way of going about your life.In that life is dealing with E,and acceptance of that.If I or any of the others help you along that journey,then I'm certain we are grateful.What I am grateful for is that you share, and tell us what and how it is for you.I hope that I do the same, and that we dance together on that journey and we keep up with the music.
RE: RE: RE: RE: RE: RE: RE: RE: living with it
Submitted by seeker2 on Sun, 2004-11-28 - 03:54
Hi Lee.
I read their posts,as I did yours.Just my own view on this,but I don't think they gave you to much at all.Credit to you for being that-you.At the end of the day that's what this is about.It's about acceptance,and realisation that no matter what,it's the way it is,so make the best and most of it.There's a lot to be said for the phrase that you used?('honesty and openness seem far more pleasant and productive'.)it's true.More can be gained by being that ,and practising the art of listening,and not judging,but hearing and reading what's being said,not assuming or guessing.
Let's face it,we can all 'front up',for want of a better phrase to hide the insecurities we feel inside,that we might not want others to see.Even go down different routes to hide how we feel at maintainingthat 'front'.I did,and for a number of years sought solace out of a bottle,and not the med kind.You learned,as I did,that it does NOT work,what does is dawning realisation,life can be different.To be that it relies on being seen as it is,how we are and see that and find a workable way to carry on life,just that we need to bring others in to get them to realise that we are trying,we want to be seen as us,and accepted for that.It sounds so simple -yet as we are all finding hard,because there is still lack of understanding,and certainly a judgemental atitude that is blind to facts when right under their nose.
Hi Lee.
I read their posts,as I did yours.Just my own view on this,but I don't think they gave you to much at all.Credit to you for being that-you.At the end of the day that's what this is about.It's about acceptance,and realisation that no matter what,it's the way it is,so make the best and most of it.There's a lot to be said for the phrase that you used?('honesty and openness seem far more pleasant and productive'.)it's true.More can be gained by being that ,and practising the art of listening,and not judging,but hearing and reading what's being said,not assuming or guessing.
Let's face it,we can all 'front up',for want of a better phrase to hide the insecurities we feel inside,that we might not want others to see.Even go down different routes to hide how we feel at maintainingthat 'front'.I did,and for a number of years sought solace out of a bottle,and not the med kind.You learned,as I did,that it does NOT work,what does is dawning realisation,life can be different.To be that it relies on being seen as it is,how we are and see that and find a workable way to carry on life,just that we need to bring others in to get them to realise that we are trying,we want to be seen as us,and accepted for that.It sounds so simple -yet as we are all finding hard,because there is still lack of understanding,and certainly a judgemental atitude that is blind to facts when right under their nose.