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living with it
Tue, 12/07/2004 - 14:43At first i thought that i was crazy, but i came to this site and i almost cried because everything is true. But is it possible to have both absence and complex partial epilepsy? Is it possible to have several types at once?
I just stare, and sometimes i almost drool. but with me, i am sort of aware of everything that goes on. i hear things, but i can't respond, like my whole being does'nt have the energy to respond, so i sort of can't move. but on a few occassions, i started to rock back and forth. I thought that i was crazy because my doctors gave me an EEG, but nothing was abnormal. But they said that it may have been that i just wasn't having a seizure at that time. My head tips most times rolls to my left and my eyes roll up and to the left also. If i'm standing, i do feel weak, but i haven't fell yet. I mostly just stand there until it passes. But the bad ones, fortunatley, have only happened while sitting. But mostly i feel that i will have one soon, usually in the morning, I feel wierd. I can;t concentrate. my thoughts are sometimes confused. I rememeber one time all of a sudden my brain felt like every neruon was turned on and on fire. It was like i was thinking of everything and nothing at the same time. my thoughts were at hyper-drive, and then i had this irresistable urge to take off running as fast as i could. i don't know what that was, but it was before my diagnosis. i am so glad that i found this site, because i have longed to just talk to people who understand what i go through, and it is also very reassuring that i am not crazy.
Comments
RE: RE: RE: RE: RE: living with it
Submitted by LeeMc on Thu, 2004-11-18 - 10:39
Anytime Ash,
I don't like feeling the need to lecture anyone - I always hated it when someone else tried to tell me how to do things and I usually did the exact opposite....but messing with our health and E is something we can't afford to get defensive or obstinate about.
I have had similar things happen over the years - mostly because I didn't count ahead to know if I had enough meds to make it through a long holiday weekend when the pharmacy was closed. I was lucky and only once had a breakthrough as a result. I finally talked to my pharmasist (who got the okay from my doc) so every 6 months I got an extra week of meds that I put aside in case of such a problem again. I used up the previous stash when I got the fresh one. It was sort of my "insurance policy".
Thank goodness I haven't needed to do that for many years now (I have learned to count ahead and make sure that I have my meds in time) but I am glad I had the "insurance" then. Health insurance doesn't want to cover extra meds now and I can't afford to out of my own pocket so it is a good thing I got organized and responsible.
My seizures have been controlled with Dilantin and Mysolin for more then 30 years now. It was a real shock to me that missing just a couple of days of meds (after having been on them for a while) could result in a breakthrough.....but it did and I learned a hard lesson. Thank goodness I was at home and not driving or something!
Take care of yourself!........................Lee
Anytime Ash,
I don't like feeling the need to lecture anyone - I always hated it when someone else tried to tell me how to do things and I usually did the exact opposite....but messing with our health and E is something we can't afford to get defensive or obstinate about.
I have had similar things happen over the years - mostly because I didn't count ahead to know if I had enough meds to make it through a long holiday weekend when the pharmacy was closed. I was lucky and only once had a breakthrough as a result. I finally talked to my pharmasist (who got the okay from my doc) so every 6 months I got an extra week of meds that I put aside in case of such a problem again. I used up the previous stash when I got the fresh one. It was sort of my "insurance policy".
Thank goodness I haven't needed to do that for many years now (I have learned to count ahead and make sure that I have my meds in time) but I am glad I had the "insurance" then. Health insurance doesn't want to cover extra meds now and I can't afford to out of my own pocket so it is a good thing I got organized and responsible.
My seizures have been controlled with Dilantin and Mysolin for more then 30 years now. It was a real shock to me that missing just a couple of days of meds (after having been on them for a while) could result in a breakthrough.....but it did and I learned a hard lesson. Thank goodness I was at home and not driving or something!
Take care of yourself!........................Lee
RE: RE: RE: RE: living with it
Submitted by ashkazz on Wed, 2004-11-17 - 12:25
thanks so much Lee. I needed that. It's just that i did tell my mom Way before i got low, but i am on a total scholarship (if you know what i mean) so i pay nothing in tuition (this will kind of help you understand my situatiion). Plus, i was illegally cut off of my govt. insurance, so this was the hold up with my meds reaching me. Plus, my dad would not cooperate (for some reason). So it was just one big mess. But thank you, i needed that.
ash
thanks so much Lee. I needed that. It's just that i did tell my mom Way before i got low, but i am on a total scholarship (if you know what i mean) so i pay nothing in tuition (this will kind of help you understand my situatiion). Plus, i was illegally cut off of my govt. insurance, so this was the hold up with my meds reaching me. Plus, my dad would not cooperate (for some reason). So it was just one big mess. But thank you, i needed that.
ash