Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.


Renaldo's eJourney shared by his wife Ellen Mason
Partner of a Person with Epilepsy
Ellen is sharing her husband’s story to encourage other people to learn about epilepsy and talk to their healthcare provider about SUDEP.
Sort by
Kristen’s Story: Finding the Positive
Person with Epilepsy
Kristen shares how a positive attitude and the generosity of others helped her get through a setback in her seizure freedom.
woman holding her child wearing purple epilepsy warrior shirts
Parent of a Child with Epilepsy
A mom whose daughter lives with seizures shares what epilepsy means to her family.
Tawana LaMar
Friend of a Person with Epilepsy
Tawana shares her experience using seizure first aid on a normal trip to the supermarket. Knowing what to do, she helped everyone around her.
Veronica C. Epilepsy Foundation
Person with Epilepsy
Veronica shares her clinical trial story. From one medication to another, she finally found the one to control her seizures.
Tracy's story
Parent of a Child with Epilepsy
Tracy shares her experience with sudden unexpected death in epilepsy (SUDEP) as a mother who lost a child.
Reagan Surgery Photo
Child with Epilepsy
Meet Stephanie's son Reagan. Reagan had brain surgery as a treatment for his seizures. He is currently seizure free with cannabidiol.
Parent of a Child with Epilepsy
Learn about Amanda and Pippa's journey with cCMV and epilepsy.
Child with Epilepsy
Meet Ryker, a four year old boy living with CACNA1A-related epilepsy.

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

24/7 helpline