Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.


Renaldo's eJourney shared by his wife Ellen Mason
Partner of a Person with Epilepsy
Ellen is sharing her husband’s story to encourage other people to learn about epilepsy and talk to their healthcare provider about SUDEP.
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Hailey and Livy Scheinman (Twins) hugging.
Sibling of a Person with Epilepsy
Meet Hailey, a Marvel's Hero Project real-life hero, and president and CEO of the Epilepsy Foundation Kids Crew.
Emily's Clinical Trial Journey
Parent of a Child with Epilepsy
Diagnosed with infantile spasms as a baby, Emily tried a clinical trial for a better quality of life.
Nina Mago
Person with Epilepsy
When Nina faced misunderstanding in Uganda, she chose to fight back with education and awareness.
Camila Coelho Sitting by the Ocean
Person with Epilepsy
Brazilian-American fashion designer and beauty entrepreneur Camila Coelho lives with epilepsy. She launched her eJourney for National Epilepsy Awareness Month.
Emma Rose
Parent of a Child with Epilepsy
Jennifer’s daughter Emma Rose lives with drug-resistant epilepsy. She shares, with hope, what their life is like.
Janine sitting with San Francisco background
Person with Epilepsy
Janine shares what being seizure free for 5 years means to her.
Holding hands showing support for Black History Month
Person with Epilepsy
Barbra Buoy shared her experience living with epilepsy for Black History Month.

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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