Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.
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Prioritizing Mental Health With Epilepsy
For as long as I can recall, I was experiencing what I described as "dizzy spells." As many people who have experienced absence seizures know, they're...
My Journey of Self-Discovery
Over the past year, I have spent time reflecting on my journey through self-discovery as a person with epilepsy. Since the beginning, my story has had...
Motivated To Keep Moving
I have suffered from JME juvenile myoclonic epilepsy (JME) since I was 13 years old, which caused me to lose consciousness and control of my bladder...
Tuesday, November 15, 2022
Finding Support Through Community
I was diagnosed with epilepsy almost a year ago. I was 18 at the time and had my first tonic-clonic seizure. It has drastically changed my life in so...
Thursday, November 10, 2022
My Seizures Are Part of Me
My journey began when I was 16 years old and officially diagnosed with epilepsy. In the beginning, I was in denial even though I had seizures every...
Connecting Epilepsy Families through Theater
Our family has been affected by epilepsy since my son had his first atypical tonic-clonic seizure when he was 6 months old. He was eventually...
Monday, November 07, 2022
Raising Awareness About Epilepsy and Self-Advocacy
I was diagnosed with epilepsy at age six and had refractory complex partial seizures for decades. After trying 17 different medications, I finally...
Friday, November 04, 2022
Lessons from Living With Epilepsy
I am 22 years old and living with subclinical seizures. I was diagnosed with epilepsy at the age of 12. In the ten years that I have lived with...
Monday, October 31, 2022
Sharing My Journey as an Epilepsy Lifestyle Advocate
Four years ago, my life changed forever. I was working as an emergency room nurse during a night shift when I suddenly felt a little lightheaded and...
Honoring the Life of Brenna
Brenna was first diagnosed with epilepsy when she was nearing her 16th birthday. We lost her to Sudden Unexpected Death in Epilepsy (SUDEP) in January...