Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.
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Honoring the Memory of Kate
“What is the matter with Kate?” There was never an easy answer to that question. Our daughter Kate had her first tonic-clonic seizure unexpectedly in...
Epilepsy Is More Than Seizures
Midway through my freshman year, I remember noticing how my academic processing speed was slower and I kept zoning out of class. This was unusual for...
Fighting for Domenick
When Domenick was four years old, he started having these “episodes” where he would be running around playing and laughing and then would stop dead in...
Perry Family eJourney
Hear from Bernard and Edana Perry as they share their story, including how SUDEP awareness can help families and individuals minimize their risk. You...
How I Live a Happy and Healthy Life With Epilepsy
My name is Sophia, and I was diagnosed with juvenile myoclonic epilepsy (JME) in June 2018, when I had a tonic-clonic seizure at 16 years old. For...
Traveling the Globe With Epilepsy
My name is Tara Silberg, and I am currently a master's student living with epilepsy in a country thousands of miles away from home. I was diagnosed...
Epilepsy Changed My Life, but I Won’t Stop Fighting
When I was 18 years old and in the first half of my freshman year of college, I got a concussion that changed my life. It was a minor one, but...
You’re Not Alone
I’ve had seizures since I was 5 years old, but they were not consistent. Some of the first seizures would happen at my friend’s houses. I remember...
Sharing My Story to Make A Difference
I had my first and worst seizure when I was one and a half years old. I could not breathe for three minutes. I was flown by helicopter to a children’s...
Why It’s Important To Talk About SUDEP
Although learning about Sudden Unexpected Death in Epilepsy (SUDEP) can be overwhelming, it's important to talk to your healthcare team about your...