Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
14 month old and Keppra...anyone else?
Thu, 08/24/2006 - 07:14Topic: Parents & Caregivers
My son recently was switched to Keppra.We are slowly lowering his dose of Phenobarbital.and working towards a 500mg dose of Keppra.I am very anxious about any side effects.HAs anyone had good/bad results with infants and Keppra?
Comments
Re: Re: Re: 14 month old and Keppra...anyone else?
Submitted by jmccand on Thu, 2006-08-24 - 16:58
My 8 y.o. daughter was diagnosed approximately 1 month ago, and put on liquid Keppra. Her seizures immediately increase to 1 a day, with frequent Auras all through the day. I thought the medicine was making her worse. However, the doctor thought she was having break-through seizures. So, he increased her dosage. 48 hours later, she increased to 4-5 seizures a day. I finally saw a post here from about a year ago, that someone else also experienced increased episodes when on Keppra. She was on Keppra as a solo med. She also was having intense sensitivity to light, with eye pain. This other person also had this as a side affect. Increased seizures, light sensitivity and eye pain are not listed as Keppra's official side affects, but they were definately seen in my daushter. She was put on Depakote and 2 days later she was seizure free, with no light sensitivity or eye pain. She has been seizure free for over a week with the medicine change. So, my point is to watch your child closely for any unusual symptoms. Be vocal with your doctor, our doctor did not believe us that the medicine caused her to get worse.
Not everyone will have the textbook reactions.
Lori
Re: Re: Re: 14 month old and Keppra...anyone else?
Submitted by EKlairsmom on Thu, 2006-08-24 - 21:04
I am e-mailing you I would love to talk to you more :)
Kari
Re: Re: 14 month old and Keppra...anyone else?
Submitted by stylzz on Thu, 2006-08-24 - 14:15
Thanxs for the reply Kari.What kind of Epilepsy does your daughter have?They are working on getting my sons levels eventually to 500 mg. a day.He is about 25 lbs.I haven't noticed too much just yet,he just stated on it.A little dizzy and wobbly right now,but they say that is normal until he adjusts.My son was also diagnosed st 6 months.They said his first seizures(2 at 4 months)was a one time event because all of his EEg's and tests were normal.until his last EEG from 3 weeks ago showed generalized epilepsy with multi focal spikes.(whatever that means)I am so hoping that he will grow out of this.His developement is good.I am just praying and trying to keep posative.:) I hope your daughter is doing well and you can e-mail me anytime also.I really enjoy having others with similar problems to talk to.It helps alot. Thanxs.