Community Forum Archive
Topic: Parents & Caregivers
07/2020 | 0 Comments
Hi all, New here, my Dad lives with epilepsy. Last August he ended up having a tonic chronic seizure for the first time in 11 years. We thought we...
06/2020 | 0 Comments
I wrote a short book. hoping to sell some copies and get a sense of achievement. I sat down and wrote my heart out. Unfortunately it isn't selling...
06/2020 | 7 Comments
We have a new diagnosis for my 6 month old grandson, hypo prolinemia. It's type 1, very rare, and apparently causing his seizures. I don't see it on...
05/2020 | 2 Comments
Hello my brother just had his first seizure today! They discharged him from the hospital and as a family, we are worried this may be too soon. We also...
05/2020 | 2 Comments
How long might it take to find an effective anti-seizure medicine for an infant? We're on our 2nd med, since baby's first seizure about 2 months ago...
05/2020 | 2 Comments
I'm grandmother to a 5-month old with epilepsy. The parents use loud hand clapping to help bring the baby out of his seizures. Is anyone else doing...
05/2020 | 2 Comments
I am hoping that I am not alone in wondering how safe will our children be once returned into a classroom setting, I have read many articles saying...
05/2020 | 1 Comments
My daughter has epilepsy. She is 2 and has slept with us since she was born. We have discussed transitioning her to a toddler bed, but we worry we...
04/2020 | 1 Comments
Looking for input from other BRE parents, My kid is drooling a lot during the day, especially when he's had a hard time sleeping the night before. No...
04/2020 | 6 Comments
Has any one ever notice that a person who has just had seizure or during a Seizure has a certain smell about them. My son has epilepsy and I am...
04/2020 | 1 Comments
MRI Shows heterotopia anb small cerbellum. Has seizures since 6 months of age. On two medicines Levitrasam and clobazam. Does not sit or crawl. Does...
03/2020 | 2 Comments
My HS Senior typically gets seizures in the first three months of the year. She has been so anxious about getting that she has been afraid to go to...
03/2020 | 1 Comments
Hello all, My two year old son was recently diagnosed with epilepsy, so far we've only witnessed absence seizures. Because epilepsy runs on both sides...
02/2020 | 2 Comments
Hi everyone i have 9 year old son diagnosed with partial complex epilepsy 5years ego.Over the summer he have increase in seizures. He was put on vit D...
02/2020 | 2 Comments
My daughter was diagnosed at age 8 was seizure free for two years on keppra x2 a day since and had a grand mal yesterday at age 10 feeling overwhelmed...
02/2020 | 4 Comments
My 11 year old son was diagnosed in January. How do the parents cope with this? I am in constant fear & stress over my child's safety. I constantly...
02/2020 | 2 Comments
Hello - I am a parent of an adult son whose has had epilepsy since he was six years old. All his life he exhibited behavioral problems. The question...
02/2020 | 2 Comments
My daughter stops breathing during a seizure. She's 11 and very recently got diagnosed. She's also asthmatic so we mistook her first couple seizures...
02/2020 | 1 Comments
My 15 year old son is making the switch from1500mg of depakote to 300mg zonisamide. We are in week 1 of 3 for this transition. The reason for the...
02/2020 | 2 Comments
Hi - new here and a little bit overwhelmed having just received an epilepsy diagnosis for my baby girl. About two weeks ago i started noticing seizure...