Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Neuropathy Connection

04/2020 | 2 Comments

Has anyone noticed a connection between Dilantin levels and neuropathy reactions? I recently retired and am wondering if upping my Dilantin from 250mg...
Temporal Lobe Epilepsy & Hallucinations

03/2020 | 6 Comments

Hi all, I have refractory temporal lobe epilepsy (left temporal lobe) with focal seizures. I have been on a number of meds, I'm currently on...
Seizures and memory loss

03/2020 | 2 Comments

Hi i have a form of epilpesy to where i have severe seizure activity on both haves of my brain. I also have petite mal seizures and forget what im...
Keppra & extreme exhaustion

03/2020 | 9 Comments

Hi guys! I've been dating my boyfriend for almost two years now and he is epileptic; I'm here to find more info on how you all go about dealing with...
Waking up in the trees

03/2020 | 2 Comments

It happened again. I was driving to Houston and somewhere between Woodville and the Indian Reservation, I opened my eyes to see the tree line covering...
Surviving with Epilepsy on Lamictal

03/2020 | 9 Comments

Hey all, I'm in a tough situation. I recently got out of a 5 year relationship with a girl who I thought was the one. The reason behind that is she...
New experience, seizure?

03/2020 | 2 Comments

Trying to do some research on what I'm experiencing but not sure if I'm coming up with the right results online. Recently at night I will experience...
ER Tech with Epilepsy

03/2020 | 2 Comments

I am an ER Tech, I have a dual role so I am also a secretary, I do everything but give shots. I am usually the only tech/secretary working on my shift...
Need advice

03/2020 | 4 Comments

Hi everyone! I am new here. I was diagnosed with epilepsy at 16 years old I am 28 .Thankfully the medicines I am taking levetiracetam 1000mg and...
Tonic Clonic changed to Status Elipticus

03/2020 | 1 Comments

Apologize for the long read, I just need to put this out there. I'm taking lamotregene to "control" my seizures. The hardest part has always been the...
Epilepsy Mental health- help

03/2020 | 4 Comments

Hi guys. This is a very long story so brace yourselves... 13 years ago I suffered my first seizure, I had 3 more all during pregnancy and then I was...

03/2020 | 4 Comments

Hi all, I got diagnosed with epilepsy once I was 18 and tried different medications and dosages and didn’t really have any luck for a while but now I...
What is Epilepsy?

03/2020 | 11 Comments

Hello, I just want to know what people have compared their experience of epilepsy with. Most people, especially those who don't know what it is, have...
EEG worries

03/2020 | 3 Comments

Hi everyone, I was dxed with epilepsy at 7 (petit mal). I stopped having seizures at 13 but at 14-16 I started getting myoclonics, and tingling in my...

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