Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Surviving with Epilepsy on Lamictal

Sat, 03/21/2020 - 01:28
Hey all, I'm in a tough situation. I recently got out of a 5 year relationship with a girl who I thought was the one. The reason behind that is she understood my illness. She drove me places when I had seizures and we didn't stay out late nor did we drink/party. However, it has come to my attention this last week that that's not what she wants in a relationship and that she wants to party and be crazy with other guys. It broke my heart her saying this because I literally can't change my lifestyle to fit what she wants. I'm really struggling coping with epilepsy now. She was my best friend who understood me and now she's gone. I titled this discussion "Dating/Surviving" because I feel like that's all I'm doing is surviving. My friends go out and drink and stay out while I'm left being a home body sober. Now I lost my one friend that I thought would always be there for me. Sorry for the rant but I'm lost. I'm on Lamictal and I want to live my life the best I can. I just feel trapped. How am I supposed to date if I cant drink and stay out late? My doctor really doesn't help that's why I took to this forum. I'm in desperate need of help because this is not the way I thought things would turn out.

Comments

I'm sorry to hear of the lost

Submitted by birdman on Sat, 2020-03-21 - 10:19
I'm sorry to hear of the lost hope you experienced.  It sounds like another case where a person assumed to know what epilepsy was all about.  But after a few years of living with you she came to really understand how deeply epilepsy can impact a person.  I'm hoping that people will gain a better understanding of living with epilepsy as the COVID 19 outbreak continues.  The news suggests staying home and only driving for necessary needs like prescriptions and food.  As the outbreak continues, maybe people will calm down and make better choices about living.  Stay committed to your needs and hopefully one day a girl will recognize the value of a partner who does not sway for instant gratification.  

i'm 70 and in the same boat, 

Submitted by myles on Sun, 2020-03-22 - 10:27
i'm 70 and in the same boat,  after 14 years my girl just told me she has a "man friend." I mean really, what exactly is a "man friend?  I just found roses in her reading room. If I was younger I'd just bolt but I have intractable seizures and they have caused other conditions that make it impossible for me to move. Hip bursitis, bad knees,, thinning bones, etc. What do I do when she's getting ready to go out and I can't? I've been here 38 yrs, where do I go. Should I ask her to leave? Then what?  She is still here for me and she doesn't throw it in my face. Plus she tells me I'm her  #1 guy. What a joke. I'm feel what your going through.. Feeling sick to my stomach! And get this, she has brought me home dinners that he has paid for.  Only on TV would you see this.  

Oh my gosh Myles I'm so sorry

Submitted by ktetreault1 on Sun, 2020-03-22 - 11:58
Oh my gosh Myles I'm so sorry. That truly is heartbreaking. It's always weird how you can love someone so much that you let your guard down just for them to take advantage of it. So sorry for what you're going through.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.