Seizures and memory loss

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Hi i have a form of epilpesy to where i have severe seizure activity on both haves of my brain. I also have petite mal seizures and forget what im doing or where i am or who i am and black out screaming in public frequently. When i have my grand mal seizures they tend to be at night or all day long and it has messed my back up really bad. Ive taken keppra and oxcarbazepine and a few more but all the meds seem to do is make me more depressed and hate life more. If anyone has symptoms like these and have good ways to cope please let me know, specificly the memory problem im getting sick of forgetting everything.

Comments

Hi,Thank you for posting, it

Submitted by Anonymous on Wed, 2020-03-25 - 09:00

Hi,Thank you for posting, it sounds like you’ve been through a lot. It’s important to remember that you are not alone, and we are here to help support you. We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health. One of the most important things to help you live with epilepsy is to find a support network. The Epilepsy Foundation has many resources available that can help you find and build upon your support network.Contact your local Epilepsy Foundation, here: https://www.epilepsy.com/affiliates, or contact our 24/7 Helpline: 1-800-332-1000, contactus@efa.org, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources, epilepsy.com/helpline. You may want to consider participating in treatment, seizure and lifestyle management programs (which can be accessed from home), that can help people with epilepsy learn skills to better manage their epilepsy and its effects on daily life. https://www.epilepsy.com/learn/managing-your-epilepsy/what-managing-epilepsy-well-network . Self-management programs like HOBSCOTCH is designed to help adults with seizures find ways to manage memory problems in order to lead happier,more productive lives, learn more here: https://managingepilepsywell.org/hobscotch. Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. It is common for some people living with epilepsy to report experiencing feelings of depression. It’s important that you’re continuing to address these challenges with your healthcare team, who can work with you to help determine what individual treatment plan is best for you. Be open and honest about how you’re feeling, and how this is affecting your health and daily life. https://www.epilepsy.com/learn/challenges-epilepsy .You may also want to consider keeping a journal or a diary to help track your seizures and document how you’re feeling. My Seizure Diary can be used to organize health issues,manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, there are many different devices that can help detect seizures and notify someone to help respond. Review our seizure alert device factsheet, with your doctor’s to see if an alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf . For additional information regarding seizure safety at night, please visit: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe/safety-while-sleeping

Hi,Thank you for posting, it sounds like you’ve been through a lot. It’s important to remember that you are not alone, and we are here to help support you. We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health. One of the most important things to help you live with epilepsy is to find a support network. The Epilepsy Foundation has many resources available that can help you find and build upon your support network.Contact your local Epilepsy Foundation, here: https://www.epilepsy.com/affiliates, or contact our 24/7 Helpline: 1-800-332-1000, contactus@efa.org, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources, epilepsy.com/helpline. You may want to consider participating in treatment, seizure and lifestyle management programs (which can be accessed from home), that can help people with epilepsy learn skills to better manage their epilepsy and its effects on daily life. https://www.epilepsy.com/learn/managing-your-epilepsy/what-managing-epilepsy-well-network . Self-management programs like HOBSCOTCH is designed to help adults with seizures find ways to manage memory problems in order to lead happier,more productive lives, learn more here: https://managingepilepsywell.org/hobscotch. Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. It is common for some people living with epilepsy to report experiencing feelings of depression. It’s important that you’re continuing to address these challenges with your healthcare team, who can work with you to help determine what individual treatment plan is best for you. Be open and honest about how you’re feeling, and how this is affecting your health and daily life. https://www.epilepsy.com/learn/challenges-epilepsy .You may also want to consider keeping a journal or a diary to help track your seizures and document how you’re feeling. My Seizure Diary can be used to organize health issues,manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, there are many different devices that can help detect seizures and notify someone to help respond. Review our seizure alert device factsheet, with your doctor’s to see if an alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf . For additional information regarding seizure safety at night, please visit: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe/safety-while-sleeping  

Hi,Thank you for posting, it sounds like you’ve been through a lot. It’s important to remember that you are not alone, and we are here to help support you. We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health. One of the most important things to help you live with epilepsy is to find a support network. The Epilepsy Foundation has many resources available that can help you find and build upon your support network.Contact your local Epilepsy Foundation, here: https://www.epilepsy.com/affiliates, or contact our 24/7 Helpline: 1-800-332-1000, contactus@efa.org, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources, epilepsy.com/helpline. You may want to consider participating in treatment, seizure and lifestyle management programs (which can be accessed from home), that can help people with epilepsy learn skills to better manage their epilepsy and its effects on daily life. https://www.epilepsy.com/learn/managing-your-epilepsy/what-managing-epilepsy-well-network . Self-management programs like HOBSCOTCH is designed to help adults with seizures find ways to manage memory problems in order to lead happier,more productive lives, learn more here: https://managingepilepsywell.org/hobscotch. Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. It is common for some people living with epilepsy to report experiencing feelings of depression. It’s important that you’re continuing to address these challenges with your healthcare team, who can work with you to help determine what individual treatment plan is best for you. Be open and honest about how you’re feeling, and how this is affecting your health and daily life. https://www.epilepsy.com/learn/challenges-epilepsy .You may also want to consider keeping a journal or a diary to help track your seizures and document how you’re feeling. My Seizure Diary can be used to organize health issues,manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, there are many different devices that can help detect seizures and notify someone to help respond. Review our seizure alert device factsheet, with your doctor’s to see if an alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf . For additional information regarding seizure safety at night, please visit: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe/safety-while-sleeping

Yep. I've definitely had the

Submitted by Misjoey101 on Tue, 2020-04-07 - 18:00

Yep. I've definitely had the increased forgetfulness seizures. I have complex partial seizures. Got on the bus. Forgot where I was going. Went back home. Suddenly remembered where. Doctor said a seizure appeared on my Neuropace machine. Keppra's a deppresant so, it's known to make you feel bad. I know you've probably heard this before but, I've learned that the best way to remember things are to write them down(notes on your phone, post-its on your computer and house) and REPEAT REPEAT REPEAT! Everyday tasks or memorized information(like school) are better for me when I just do them(or write them) over and over again. Specific events and their content(like a meeting or hanging out with a group of friends) are better when written down before(for attendance) and after they occur. Then, I read them again and it all comes back to me later! I guess the things that make me FEEL better are keeping all of the complementing, positive, social things close by and ready to read and see when I feel down: the amazing card my roommate wrote before she had to leave in college, the local scholarships I got in high school, the letter my grandfather wrote saying I was " the bravest person" for having brain surgery when I was 11 and more. It all makes me better when I feel down.