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Hi all, I got diagnosed with epilepsy once I was 18 and tried different medications and dosages and didn’t really have any luck for a while but now I’m currently 25 and taking keppra and my seizures seem to have eased up a lot but it’s seems to be having a massive effect on my mental frame of mind and also my anxiety and I just don’t know what to do, I went from being someone who seemed to be on top of the world but now I just feel like I’m on rock bottom and just don’t know what to do or who to speak to, I try to speak to my friends but they don’t know how I’m feeling because they’ve never been in the situation I feel like I’m in, I’m just really looking for some help and advice and I’d massively appreciate it if anybody could help me out please

Comments

Hi,Thank you for posting and

Submitted by Anonymous on Fri, 2020-03-13 - 09:43

Hi,Thank you for posting and understand your frustrations and concerns. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone, and we are here to help support you. We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health .One of the most important things to help you live with epilepsy is to find a support network. The Epilepsy Foundation has many resources available that can help you find your support network. Contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national andlocal resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline .Or contact your local EpilepsyFoundation: https://www.epilepsy.com/affiliates , to find support groups, events and programs in your community. Additionally, you may want to consider participating in treatment, seizure and lifestyle management programs, that can help people with epilepsy learn skills to better manage their epilepsy and its effects on daily life: https://www.epilepsy.com/learn/managing-your-epilepsy/what-managing-epilepsy-well-network Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects.However, we know that some individuals may experience too many side effects,t hat are very bothersome or cause other health problems. To learn more about Keppra and things to look for vist: https://www.epilepsy.com/medications/levetiracetam. It is common for some people living with epilepsy to report experiencing feelings of depression and anxiety. It’s important that you're continuing to address these challenges with your healthcare team who can work with you to help determine what individual treatment plan is best for you. Be open and honest about how you’re feeling, and how this is affecting your health and daily life. You may also want to consider keeping a journal or a diary to help track your seizures and document how you’re feeling. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary ,is a great tool for identifying & tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers, and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team.

Hi,Thank you for posting and understand your frustrations and concerns. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone, and we are here to help support you. We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health .One of the most important things to help you live with epilepsy is to find a support network. The Epilepsy Foundation has many resources available that can help you find your support network. Contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national andlocal resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline .Or contact your local EpilepsyFoundation: https://www.epilepsy.com/affiliates , to find support groups, events and programs in your community. Additionally, you may want to consider participating in treatment, seizure and lifestyle management programs, that can help people with epilepsy learn skills to better manage their epilepsy and its effects on daily life: https://www.epilepsy.com/learn/managing-your-epilepsy/what-managing-epilepsy-well-network Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects.However, we know that some individuals may experience too many side effects,t hat are very bothersome or cause other health problems. To learn more about Keppra and things to look for vist: https://www.epilepsy.com/medications/levetiracetam. It is common for some people living with epilepsy to report experiencing feelings of depression and anxiety. It’s important that you're continuing to address these challenges with your healthcare team who can work with you to help determine what individual treatment plan is best for you. Be open and honest about how you’re feeling, and how this is affecting your health and daily life. You may also want to consider keeping a journal or a diary to help track your seizures and document how you’re feeling. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary ,is a great tool for identifying & tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers, and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. 

Hi,Thank you for posting and understand your frustrations and concerns. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone, and we are here to help support you. We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health .One of the most important things to help you live with epilepsy is to find a support network. The Epilepsy Foundation has many resources available that can help you find your support network. Contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national andlocal resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline .Or contact your local EpilepsyFoundation: https://www.epilepsy.com/affiliates , to find support groups, events and programs in your community. Additionally, you may want to consider participating in treatment, seizure and lifestyle management programs, that can help people with epilepsy learn skills to better manage their epilepsy and its effects on daily life: https://www.epilepsy.com/learn/managing-your-epilepsy/what-managing-epilepsy-well-network Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects.However, we know that some individuals may experience too many side effects,t hat are very bothersome or cause other health problems. To learn more about Keppra and things to look for vist: https://www.epilepsy.com/medications/levetiracetam. It is common for some people living with epilepsy to report experiencing feelings of depression and anxiety. It’s important that you're continuing to address these challenges with your healthcare team who can work with you to help determine what individual treatment plan is best for you. Be open and honest about how you’re feeling, and how this is affecting your health and daily life. You may also want to consider keeping a journal or a diary to help track your seizures and document how you’re feeling. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary ,is a great tool for identifying & tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers, and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team.

Hello,I was diagnosed at the

Submitted by nancy@follysbest.com on Sat, 2020-03-14 - 11:06

Hello,I was diagnosed at the age of 11 and also take Keppra to help control my epileptic seizures. In the last month i have started having non epileptic seizures which aren't suppose to be harmful to the brain but collapsing and seizing when your over 6 feet tall can certainly cause harm. Im told the non epileptic seizures are do to constant stress, anxiety and depression and that I should see a psychiatrist. I'm currently trying to find a psychiatrist now, however, I think speaking with someone with the same experiences would be helpful in coping with the emotions created by Epilepsy.

If you live in a area that

Submitted by Ctrygrl32 on Fri, 2020-03-20 - 21:18

If you live in a area that thc is legal it really is the best medicine for reducing stress, seizures, and it helps tremendously with the migraines associated with my epilepsy. I was diagnosed with epilepsy @ the age of 2 and I have dealt with a lot that stems from my epilepsy. I have always had a major problem with chronic migraines and when I have seizures I have the peti Mal seizures where I stare off and the best way I can describe having those types of seizures is that I kind of leave reality for a short amount of time and then come back to as I come out of the seizure.