Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Thursday, January 25, 2024
Navigating a New Epilepsy Diagnosis
I’m Helen, and I’m 1 in 26. Recently diagnosed with epilepsy, I’m navigating this new path while staying true to myself. A medical procedure in March...
Wednesday, January 24, 2024
Overcoming Challenges To Make a Difference
My name is Sophia, and I am 20 years old. I have lived with epilepsy for 13 years, since I was diagnosed at 7 years old. My epilepsy is caused by a...
Monday, January 22, 2024
Finding My Strength in a Supportive Community
Epilepsy caused a significant turning point in my life. It all started when I was 13 years old. I had my very first seizure at almost midnight on my...
Wednesday, January 17, 2024
Never Lose Hope
I was just 9 years old when my world fell apart. I was the youngest in a car that crashed on June 7, 1995. My injuries were severe, and I was...
Wednesday, January 10, 2024
Sharing My Journey With Epilepsy
I woke up in a hospital bed. A man in a white coat was smiling at me, saying, "There is no mass in your brain!" I looked to my right, and my wife sat...
Thursday, January 04, 2024
Compartiendo Nuestra Historia
Me diagnosticaron con epilepsia ya de adulto. Mi esposa y yo regresábamos de las Vegas y, aparentemente, tuve una crisis epiléptica en la carretera...
Thursday, January 04, 2024
La Epilepsia No Me Controla
Mi trayectoria con la epilepsia comenzó a la edad de 16 años después de tener dos crisis epilépticas mientras dormía. Recuerdo que me desperté con...
Wednesday, January 03, 2024
Finding Clarity Through My Epilepsy Diagnosis
I was having seizures for approximately 10 years before I was diagnosed with epilepsy. It all began when I was in third grade. My mom noticed that I...
Monday, December 18, 2023
Pursuing My Passion Despite Epilepsy
I was diagnosed with epilepsy when I was 2 years old. It was a completely unexpected diagnosis. My family never saw it coming. They thought I was...
Wednesday, December 13, 2023
Accepting the "New" Me
I was diagnosed with focal onset and generalized epilepsy with uncontrolled seizures in July of 2023 after having a seizure at work. The subsequent...