Navigating a New Epilepsy Diagnosis

I’m Helen, and I’m 1 in 26. Recently diagnosed with epilepsy, I’m navigating this new path while staying true to myself. A medical procedure in March 2023 led to my first post-op seizure. Fast forward six months, and my second seizure occurred while driving. Thanks to my mom’s quick thinking, we’re both here today.

This journey is new. I had to shift from doing art markets with my small business, Cover Yo Space Gurl, to taking a month off due to the uncertainty caused by my epilepsy diagnosis. My art has always been a way to express myself, and it was hard for me to create colorful and new art while having these feelings of uncertainty. Having to rely on others hurt my pride, especially when it meant stepping back from the art markets I love. My friends and family have been nothing short of amazing during this time, but the feelings of hopelessness were still there despite their love and support. I struggle with inspiration but try to find something to enjoy each day, even if it’s a silly little doodle or catching up with a friend.

Being open about epilepsy has been empowering. To celebrate my 39th birthday, I’m sharing my story and raising funds for the Epilepsy Foundation on social media. They’ve been a great resource, and participating in their adult support groups has provided valuable coping mechanisms, like connecting with others who share similar experiences.

I’m still in the process of learning about what my life will be like from here on out—I am currently trying to avoid my seizure triggers by resting, keeping a low-stress lifestyle, and taking my medication regularly. Getting back into art markets in February excites me. I won’t let epilepsy define me or control my life. I’m determined to live it fully, continuing to create and work on my passions.

I hope my story inspires those around me to continue dreaming, doing what they love, and knowing they aren’t alone. If you feel moved, there are many ways to get involved and make a difference, from sharing your journey to creating your own fundraiser to raising awareness about epilepsy and seizures.