Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
CBD/Surgery
Mon, 01/08/2018 - 14:52Topic: Surgery and Devices
Hello everyone my name is mike, and I have complex partial seizures caused by right temporal lobe epilepsy. I have viewed this forum a few times, but this is my first time making a thread.
My neurologist recently suggested that I should go for surgery and have my right hippocampus removed, because I have tried several medications and they do not completely control my seizures. They say that the surgery is very successful and has a high success rate. Also that it has come a long way in the past few years, but it still is terrifys me...
I was wondering a couple things..
If anyone that has the same epilepsy as me has tried using CBD and what their experience was with it. Does it completely control your seizures? Do you still have to take your other medications? Have u got immune to it?
I was also wondering about people that have had the surgery and how you are doing now. Are u seizure free,? Do you still have to take medications? How is ur scaring?
Or if anyone has any links to other related discussions or helpful articles it would be greatly appreciated!
I had Partial complex (also
Submitted by marko165 on Wed, 2018-07-18 - 20:06
I had Partial complex (also diagnosed with petit mal) seizures since 6 yrs old. Went through numerous neurologists who all kept saying only medication can help. It didn't. In 1995 I found a fantastic neurologist, who immediately concluded I was a surgical candidate. He sent me to a neurosurgeon who ran a battery of tests. In Feb 1996, at 31 yrs old, I had a right temporal lobectomy and have not had a seizure since. I sometimes had a half dozen a day. I still get an occasional aura, for which I still take meds, but I got my life back. The scar is mostly hidden by hair and what does show is barely noticeable unless I point it out. Best of luck to you.