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CBD/Surgery
Mon, 01/08/2018 - 14:52Topic: Surgery and Devices
Hello everyone my name is mike, and I have complex partial seizures caused by right temporal lobe epilepsy. I have viewed this forum a few times, but this is my first time making a thread.
My neurologist recently suggested that I should go for surgery and have my right hippocampus removed, because I have tried several medications and they do not completely control my seizures. They say that the surgery is very successful and has a high success rate. Also that it has come a long way in the past few years, but it still is terrifys me...
I was wondering a couple things..
If anyone that has the same epilepsy as me has tried using CBD and what their experience was with it. Does it completely control your seizures? Do you still have to take your other medications? Have u got immune to it?
I was also wondering about people that have had the surgery and how you are doing now. Are u seizure free,? Do you still have to take medications? How is ur scaring?
Or if anyone has any links to other related discussions or helpful articles it would be greatly appreciated!
Comments
Hi Mike, My situation is
Submitted by Jason R on Tue, 2018-04-10 - 17:45
Hi Mike, My situation is similar to what you are going through. I have had complex partial seizures for 20+ years. They were isolated to my right temporal lobe. I have not tried CBD but I have been on and off many medications without much luck, I was still having a seizure or two a month. In 2013 I had the laser ablation surgery, I was seizure free for 18 months then my seizures started again so in June of 2016 I had a temporal lobectomy and have been seizure free since. The scar was large at first however my hair grew over and the scar is not visible. Even though I keep my hair short unless I tell someone they do not even notice it. If your doctor believes the surgery will help I recommend giving it a try! I am down to 1 medication from as many as 4 and hope to stop taking all medications soon. I wish you the best and hope surgery is the answer you have been looking for!
If you go to a good hospital
Submitted by RTLEmum on Mon, 2018-04-30 - 10:20
If you go to a good hospital, the risks are very low for the scary stuff: infection, stroke, coma, etc. less than 1-2%. You have to think about the risks you experience every day with complex partial seizures. All you need is to have a complex partial seizure while crossing the road and you could get hit by a car. Don't look at pictures of the scar after surgery--it looks horrible after surgery, very Frankenstein, but it looks NOTHING like thata month later. The scar keeps improving in appearance up to a year after. Unless you like shaving your head very short, you won't see it with hair. Check with your doctor, but uncontrolled right temporal lobe epilepsy is probably a lot more risky than the surgery. Uncontrolled right temporal lobe epilepsy can get worse and progress over time. There are people who suffer uncontrolled RTLE until age 40, get the surgery and are seizure free and then wonder why they did not get the surgery at 20. I would at least do the surgical work up and see what your neuropsych test says, what the functional MRI says, what EEGs say, etc.--you don't have to proceed with surgery just because you have done the work up. I would get 3 separate opinions.
What was the outcome from
Submitted by Suzan Borno on Sun, 2018-03-18 - 07:59
What was the outcome from laser ablation surgery? My neurologist says I may be a good candidate for it.