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Temporal Lobe Epilepsy - Simple partial Seizures

Mon, 06/05/2006 - 05:40
Hi, I'm new to this, my son (10years old) was diagnosed with temporal lobe epilepsy last week, i believe he has simple partial seizures although the doctor did not go into this. For the past year or so he has experienced episodes of de ja vu, at first we thought that was all they were, after he has theses episodes he has a really bad headache, feel sick, sometimes goes clammy and feels quite tired. The last couple of times he had it he also heard voices, which was really scary for him, the episodes of de ja vu and voice hearing usually only last about 2 mins. Sorry if I'm rambling on a bit, but I feel in such a daze about it all, my son is an above average intelligent boy and I feel like we've gone from just thinking he's having de ja vu, which most people I know get every so often, to epilepsy. The diagnosis was confirmed by a 3rd EEG, but the doctor doesn't seem to be able to answer any of my questions and I reall feel like we're walking blind. If anybody out there can help answer these questions I'd be so grateful, firstly I asked the doctor what the chances are of the seizures developing into full blown fits, she said she didn't know, I asked if he might grow out of them, she said she didn't know. Basicallly she said they will either stay the same, get better or get worse, which to me is pretty obvious! She left it up to me whether or not we started treatment, and so far we haven't, but if I start treatment now while they're not so bad will that prevent them getting any worse? Or if they're going to get worse will that happen anyway regardless of whether we start treatment now or later? If anyone can help I'd be so grateful, right now I don't know whether I'm coming or going. Thanks Lisa

Comments

Hi Lisa, I found some

Submitted by solis on Sat, 2006-07-01 - 23:01
Hi Lisa, I found some additional information: "Will I always have epilepsy?" http://www.epilepsy.com/101/ep101_duration.html Here are some pages dedicated to parents of children with epilepsy http://www.epilepsy.com/info/family_kids_diagnosis.html I hope I have given you some helpful information.. Please, try to remember that 3/4 of people with E live normal lives with perfectly controlled seizures. ~sol

Re: Temporal Lobe Epilepsy - Simple partial Seizures

Submitted by warren on Fri, 2007-01-19 - 16:04
Lisa, Hi my name is Michele and I have a 11 year old son that has been having the same side effects as your son for almost a year. I talked to our family doctor who kept telling me it was normal to have deja vu at this age. He would have these visions then vomit almost right after. He also is a bright child, but starting having a hard time in school. His teachers said he would drift away for minutes then return to himself. I finally ask to see a specialist. We seen him this past wed. and he belives he is having simple partial seizures. He also has had a 6 year history of migraines. He is scheduled for an eeg on monday and an mri. He was put on Tompax.

Re: Temporal Lobe Epilepsy - Simple partial Seizures

Submitted by celiac-induced epilepsy on Sun, 2007-04-15 - 02:57
My daughter's symptoms are an exact match to what you describe! She is 12 now and they started 4 years ago. My reading suggested that EEG confirmed TLE usually is less responsive to medication, and that it is rarely confined only to childhood. My daughter also has celiac, and with the diet her seizures are controlled.

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