Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

How To Live My Life

09/2019 | 6 Comments

Hi. I have epilepsy. I'm young and about to graduate college. I don't have the ability to drive(epilepsy), and I am very poor, and I have no family to...

09/2019 | 4 Comments

First Seizure in 7 yrs

09/2019 | 2 Comments

So about 5 days ago I had my first seizure in 7 years, out of work til I see a knee specialist and I am terrified they are going to report this...
PNES diagnosis- is it a joke?

08/2019 | 7 Comments

I did an overnight VEEG test at Yale in June, and didn't have any seizures. After I was there one night, the neurologist walks in with his entourage...
Are these seizures?

08/2019 | 1 Comments

Okay a little back ground first. I was diagnosed with JME after an EEG showed spike waves at 4hz. I get complex partials were I feel really intense...
Myoclonic seizures and exercise--

08/2019 | 1 Comments

Hello! I am curious about whether or not anyone has experienced anything similar to this (and am very welcome to tips and tricks to quell it): I've...
Medication Withdrawal Questions

08/2019 | 2 Comments

Hi there! I've got a few questions about people who have JME and their experiences with AEDs, more specifically, with medication withdrawal. A bit of...
Seizure Tracking Device

08/2019 | 3 Comments

I'm starting college next month and I was given a suggestion to wear a seizure tracking device. Does anyone know where you can get one? I heard there...
Struggling with epilepsy symptoms

08/2019 | 1 Comments

I'm 27 and have a history of grand mal seizures, but I haven't had a seizure since 2013, when I was put on Kepra. Although I don't have seizures...
Our story

08/2019 | 1 Comments

We our familiy that has struggled with epilepsy for 4 decades plus. Begiinning with myself at a young age. Reaaly didn't realize how much that...

08/2019 | 1 Comments

I suffered with herpes encephalitis at around 2 years old and made an exceptional recovery. Over the years up until I was about 12 I had these deja by...

07/2019 | 1 Comments

Hi all,my 15yr old daughter was just diagnosed with juvenile myoclonic and though she is now 90% seizure free on this drug, her mood is one of someone...
Losing hope

07/2019 | 2 Comments

My wife and I have been together almost 3 years. She's 21 and I'm 20. We have a 1 year old together and a 4 year old just starting school (I'm her...

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