Vision/Hallucinations from Seizures

Hello, I remember all of mine from over the years. My last one involved seeing a poem written on a script before me and it started "An ode to...." and foretold of the end of the world and the story of how and why we were here. It was so upsetting to know this, so then my brain sent in another form of the poem which wasn't so bad (again written on a script). I know that sounds very dramatic! My visuals come in like a slide show, one image zooms out the way to be replaced by another. Sometimes it has been items like tables. Other times when I have been looking at people in their face their faces appear like TV snow. My seizures go visuals (starting with electric tunnel vision fuzz) then items alongside fear, then I get a taste like all my taste buds are so alive, then smell, then a sense of euphoria. Then I am gone. Waking up is the worst. The sleepiness, confusion like I don't know what anything is, the head ache like no other headache, then the fear and the heart beat.Everyone's epilepsy experience is different. x

Thank you so much for your response. I would have horrible visions of someone trying to kidnap me and I'm looking for support as, obviously, this caused me great trauma during the time.

Hi charper,Thanks much for posting. It’s important that you continue follow-up with your healthcare team to express your concerns and discuss any changes in side effects, seizure types, frequency, behaviors and symptoms, to determine what individual treatment is best for you.https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf  Seizures can take on many different forms and affect different people in different ways. Learn more about seizures and the various types of seizures here: https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during-seizurehttps://www.epilepsy.com/learn/types-seizures  You may want to consider with your doctor having a device, that can help track  seizures, by visiting:  https://www.dannydid.org/https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf and by keeping a seizure diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary These tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your healthcare team. https://www.epilepsy.com/learn/managing-your-epilepsy  For additional questions, please contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org , where a trained information specialist can connect you to resources,  provide referrals and additional support. epilepsy.com/helpline Additionally, your local Epilepsy Foundation:https://www.epilepsy.com/affiliates can help you find resources, support groups, events, and programs in your community.