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Advice, Care, and Venting

Mon, 06/18/2018 - 14:18
Hey, I'm 18, relatively new. I've been diagnosed with Absence Seizures around May 18th, they're pretty late but I started getting small ones around 16, and now I'm treating it Lamotrigine. I'm frustrated, I never planned for the circumstances I'm in and that's my fault. Now that I'm here, though. Any tips and tricks to controlling my seizures? Any advice on my driving, I'm 18 and still have a permit and I feel inferior to others who can drive, especially since I love cars. How can I take the efforts to prevent my seizures permanently or for a long enough period where I do not have to worry about self-injury or harm to others.

Comments

Nobody plans for a lot of

Submitted by Amy Jo on Mon, 2018-06-18 - 16:10
Nobody plans for a lot of things, don't beat yourself up over the past. Dealing with the now is good, later on you can look forward when you've got the now covered. Taking your meds reliably goes a long way to controlling seizures - lamotrigine is started and stopped slowly so it has some limitations. Have you gotten to the target dose yet? Once there, will you have a follow up EEG to check if the activity is controlled because it isn't like you can reliably know otherwise (EEG checking on absence is possible, not all seizures are as easily checked). I don't know how much avoiding common triggers (=taking care of yourself) helps with absence but  sleeping well, reducing stress (exercise and yoga help reduce stress), avoiding recreational drugs, avoiding people who have contagious illnesses, ... all helps. Each state has rules about driving, you need to find out what your state's rules are and stick with them.

I am indeed at the target

Submitted by locustosylph on Mon, 2018-06-18 - 22:39
I am indeed at the target dose, I appreciate everything you said, seriously. More than you know. I've been consistently stressed and paranoid about my Epilepsy. I got back to my Neurologist soon and I will talk about a follow up EEG.

No body plans for things like

Submitted by just_joe on Tue, 2018-06-19 - 12:24
No body plans for things like this. Do people walking across the street plan to get it by cars?You are already frustrated and haven't even gotten the therapeutic levels to the amount the doctors want then You do dont know it the medications are stopping some seizures or reducing others that you could have happened. There is no one medication at this size dosage that can fix this issue. Each persons seizures and epilepsy are theirs. They may have the same name and type of seizure but like everything else your body has a lot to do with how those medications work.If you are on medications take them as directed. If it says bi daily those times need to be as close to 12 hours apart as possible. The therapeutic levels build up in your body to stop breakthrough seizures from happening. Those breakthrough seizures can happen when a dose is missed or taken late. It can also help in the case a dose is missed. I know been there done that many times. It will take more then a month to find out if the medications are working right and if adjustments need to be made. Your driving may be curtailed or restricted because of laws written to protect the people. Doctors have paperwork to fill out if a patient has a seizure issue. If said patient goes certain time period the license is reinstated.You can work with your neurologists and always ask questions regarding medications, dosages and other procedures that can help CONTROL your seizures better. The docs generally ask questions in a visit. For every questions they asked me I had at least one for them.  

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