Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Finding Zeiss Z1 blue lenses to treat photosensitive epilepsy

Thu, 02/14/2008 - 19:56

Staff Notice

For about 3 percent of people with epilepsy, exposure to flashing lights at certain intensities or to certain visual patterns can trigger seizures. This condition is known as photosensitive epilepsy.

Read more: http://www.epilepsy.com/learn/triggers-seizures/photosensitivity-and-seizures


I found a study which shows that Carl Zeiss brand z1 blue lenses are highly effective in treating photosensitive epilepsy. The study is at: http://www.blackwell-synergy.com/doi/full/10.1111/j.1528-1167.2006.00463.x?prevSearch=allfield%3A%28z1%29.

These lenses are available in Europe, but I haven't been able to find them in the US or on the internet. I emailed Zeiss customer service about this, but I got no response. Does anyone know where I can find these lenses. I suffer from photosensitivity (as well as temporal lobe epilepsy). I use polarized glasses, and these help some, but I'd really love to try these lenses.

Also, has anyone with photosensitivity tried using any kind of blue tinted glasses, or cross polarized glasses? If you have had good results, would you please tell me which brand you used and where I can find them?

UPDATE: I found out from another website that these lenses are not available in North America. This came from Carl Zeiss customer service.

Comments

Regarding above, using any

Submitted by emeraldeyes1 on Fri, 2018-04-13 - 10:46
Regarding above, using any blue tinted lenses is not the same as the Zeiss or BPI Deep Blue Zee lenses. Doing so could pose a potentially dangerous situation. If you think about sun screen it can be clear, tinted, white and lined up next to each other they all may "look" similar or the same, but certainly they do not all perform the same. The studies have shown certain wave lengths of light have a particular effect on the patient and these lenses are more to do about wave length filtration than the specific color, although some of these characteristics overlap. Do not be misled or fooled when you google photosensitive epilepsy lenses. Most sites lead you to something that has nothing to do with the condition. In my experience, the Zeiss lenses have performed the best although the Deep Blue Zee lenses have positive results too.

Copy the url through "html"

Submitted by GloriaH on Mon, 2018-06-18 - 21:44
Copy the url through "html" and leave off "I have" at the end. She made a mistake in typing and didn't realize she had put these words in the wrong place.

Copy the url through "html"

Submitted by GloriaH on Mon, 2018-06-18 - 21:59
Copy the url through "html" and leave off "I have" at the end. She made a mistake in typing and didn't realize she had put these words in the wrong place.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.