Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Finding Zeiss Z1 blue lenses to treat photosensitive epilepsy

Thu, 02/14/2008 - 19:56

Staff Notice

For about 3 percent of people with epilepsy, exposure to flashing lights at certain intensities or to certain visual patterns can trigger seizures. This condition is known as photosensitive epilepsy.

Read more: http://www.epilepsy.com/learn/triggers-seizures/photosensitivity-and-seizures


I found a study which shows that Carl Zeiss brand z1 blue lenses are highly effective in treating photosensitive epilepsy. The study is at: http://www.blackwell-synergy.com/doi/full/10.1111/j.1528-1167.2006.00463.x?prevSearch=allfield%3A%28z1%29.

These lenses are available in Europe, but I haven't been able to find them in the US or on the internet. I emailed Zeiss customer service about this, but I got no response. Does anyone know where I can find these lenses. I suffer from photosensitivity (as well as temporal lobe epilepsy). I use polarized glasses, and these help some, but I'd really love to try these lenses.

Also, has anyone with photosensitivity tried using any kind of blue tinted glasses, or cross polarized glasses? If you have had good results, would you please tell me which brand you used and where I can find them?

UPDATE: I found out from another website that these lenses are not available in North America. This came from Carl Zeiss customer service.

Comments

Although you can not get

Submitted by emeraldeyes1 on Tue, 2020-04-28 - 11:50
Although you can not get these in the United States at the present time. I am still able to provide non prescription Zeiss Z1 F133 lenses (plano).  I have a significant supply and have been helping patients' with these lenses for years. You are always welcome to contact our office at Emerald Eyes in Sea Girt, New Jersey. 732-974-3937. Of course right now we are closed due to Covid-19, but there is someone in the office 11:30 to 1:00 m-f to answer calls or leave a message. also you can email me @ emeraldeyes1@att.net

I live in New York and have

Submitted by silverman_alexandra on Thu, 2020-06-18 - 11:51
I live in New York and have been diagnosed with photosensitive epilepsy. Does anyone know how or through who I can get these lenses shipped to New York? (nonprescription)

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.