Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Andrews/Reiter Institute

Sun, 03/29/2009 - 16:16
I stumbled across this website for the Andrews/Reiter Institute in California, where they claim an amazing success rate for stopping seizures without drugs. It almost sounds to good to be true, and I can't find anyone who has any experience with them. It seems like with a success rate that high they would be front page news in the world of Epilepsy, but none of the Dr.s , nurses, or other people in our support group has ever heard of them. If anyone reading this has any experience with them, please respond. There are alot of us out here that are extremely interested. Thanks for your help.

Comments

Re: Andrews/Reiter Institute

Submitted by riptide10x on Sat, 2010-11-06 - 22:56

As much as I wanted to believe it was real, I had a feeling she was promising too much. I'm sorry to hear you got ripped off but glad that surgery helped. We just got back from 3 weeks of seriously  intense testing at the Cleveland Clinic in Ohio, where my son had a stereoelectroencephalography (SEEG) . That's where the surgeon drills holes (14) in your skull and implants EEG electrodes directly on the surface of the brain to get really detailed readings. They determined that the location of the focal points was in an area that was too risky to remove. He will have to have a W.A.D.A. test to be sure. By the way, that hospital was really impressive. Their epilepsy dept. is huge. After all the tests were completed, they had a  2 hr. conference with all the neurologists and surgeons (about 15 people), to discuss the treatment options for my son. The final decision was that it was too risky and he has too much to lose to risk surgery. They suggested that the NeuroPace may be an option when it is finally approved. 
       Good luck to you and your wife.

As much as I wanted to believe it was real, I had a feeling she was promising too much. I'm sorry to hear you got ripped off but glad that surgery helped. We just got back from 3 weeks of seriously  intense testing at the Cleveland Clinic in Ohio, where my son had a stereoelectroencephalography (SEEG) . That's where the surgeon drills holes (14) in your skull and implants EEG electrodes directly on the surface of the brain to get really detailed readings. They determined that the location of the focal points was in an area that was too risky to remove. He will have to have a W.A.D.A. test to be sure. By the way, that hospital was really impressive. Their epilepsy dept. is huge. After all the tests were completed, they had a  2 hr. conference with all the neurologists and surgeons (about 15 people), to discuss the treatment options for my son. The final decision was that it was too risky and he has too much to lose to risk surgery. They suggested that the NeuroPace may be an option when it is finally approved. 
       Good luck to you and your wife.

Re: Andrews/Reiter Institute

Submitted by Xandra on Sat, 2010-11-06 - 14:30

Dear Catlady,

I was wondering if you did the full year program? She talked for an hour every week, a year long, and that is how we worked and she helped me to bring my seizures down to a few a year, using several methods, but not the one you mentioned. I know Donna is not the usual doctor, that is for sure! But her successrate is high and there is a reason for it, her work is the most comprehensive elilepsy treament around. She is a doctor who cares, who knows from personal experience what it is to have seizures. She had her share of it, and then some. I went to one of the most respected epilepsy specialists in California, won't mention his name, he was good, and knew a lot about epilepsy, but never had a seizure in his life. There was something lacking in his treatment, and it was heart-felt experience of this condition. I like to consult the best when it comes to my health and take responsibility myself, not only be dependent on a drug alone or a few visits with a doctor. Donna supports that 100%.And it worked for me... worth the money, I got my life back and feel restored by her support. I could not have done this without her...

Xandra

 

Dear Catlady,

I was wondering if you did the full year program? She talked for an hour every week, a year long, and that is how we worked and she helped me to bring my seizures down to a few a year, using several methods, but not the one you mentioned. I know Donna is not the usual doctor, that is for sure! But her successrate is high and there is a reason for it, her work is the most comprehensive elilepsy treament around. She is a doctor who cares, who knows from personal experience what it is to have seizures. She had her share of it, and then some. I went to one of the most respected epilepsy specialists in California, won't mention his name, he was good, and knew a lot about epilepsy, but never had a seizure in his life. There was something lacking in his treatment, and it was heart-felt experience of this condition. I like to consult the best when it comes to my health and take responsibility myself, not only be dependent on a drug alone or a few visits with a doctor. Donna supports that 100%.And it worked for me... worth the money, I got my life back and feel restored by her support. I could not have done this without her...

Xandra

 

Re: Andrews/Reiter Institute

Submitted by riptide10x on Sat, 2010-11-06 - 22:18
I'm really sorry to hear you were taken advantage of.   I can maybe understand how this therapy could help someone with  psychologicaly related siezures but in our case we're dealing with scar tissue damage. My son is really well adjusted and accepts the fact he has epilepsy and deals with it amazingly well, but still has seizures that just happen at anytime or place, no matter what he's doing. I don't doubt that Andrews/Reiter has helped some people, but the one thing that has become very clear to me since this whole thing started is that everyone with epilepsy is a totally unique case and each one responds differently to different treatments. It seems that the doctors are more like detectives trying to solve a mystery. I think if there was a treatment with that success rate it would be very thoroughly studied and duplicated by alot of other doctors, but hey, what do I know? 

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.