Forms & Resources

Our toolbox is the place to find resources for managing your epilepsy and other needs, helping your loved one, and teaching others about epilepsy and seizures.

Downloadable Toolkits

  • Difficult to Treat Seizures Toolkit - Anti-seizure medications work well for about 2 out of 3 people. This toolkit provides answers to questions, helps you navigate challenges, and connects you to resources for additional treatment options.
  • DEE Toolkit - Learn more about Developmental and Epileptic Encephalopathy with a toolkit which breaks down a rare, complex form of epilepsy diagnosis into an easy-to understand resource for you and your loved ones.

Are you new to epilepsy and seizures?

Download our "New to Seizures and Epilepsy" guide to learn what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to improve you seizure control.

Want to help others know what to do when someone has a seizure?

Find videos, posters, and more in our "Seizure First Aid Resources" section that you can use to teach others seizure first aid.

Do you have questions about an epilepsy treatment?

Download treatment factsheets about surgery, vagus nerve stimulation (VNS), responsive neurostimulaton (RNS), and dietary therapy. Then take them to your next health care appointment and talk it over with your provider.

Are you taking care of your health and wellbeing?

Whether you live with epilepsy or care for someone who does, we all need to take time to care for ourselves. Download the "Wellness Support Tools" to find help with managing emotional health, diet and nutrition, physical activity, sleep, stress, social relationships, education and employment, and independent living.

Do you want to track your seizures? Do others know what to do when your or your child has a seizure?

Find tools in the "Seizure Forms" section to help you observe, record and keep track of seizures, as well as create action and response plans for adults, school children and camp.

Are you looking for tools to prepare for appointments and keep track of medications, notes and questions?

Find forms, checklists, and factsheets in the "Medication and Communication Tools" section to help you prepare for a telemedicine (or telehealth) appointment, manage medications, work with your health care team, understand sudden unexpected death in epilepsy (SUDEP), and more.

What does that word mean?

Find the definitions of words related to epilepsy and seizures in the "Glossary" section.

We Are Here - 24 Hours a Day, 7 Days a Week, Including Holidays

The Epilepsy & Seizures 24/7 Helpline has trained information specialists standing by to answer your questions about epilepsy and seizures. They can provide you with help, hope, support, guidance, and access to national and local resources.

Call 1-800-332-1000 (en Español 1-866-748-8008)

In Your Community and Online

More places you can find support, information and resources:

Nile - The New Seizure Diary App

NILE app
 

The Epilepsy Foundation’s My Seizure Diary is being discontinued after supporting people with epilepsy, clinicians and the research community for the past 15 years. Today, there is a new seizure diary app, Nile, to continue supporting the large community of electronic diary users.

With epilepsy, consistency is key. If you don’t follow your medication regimen, or fail to record your events, seizures, and side effects, you’re losing valuable time. It’s not about the doctor appointment. It’s about what you do in between. Think of Nile as your personal health assistant, making sure you stay on track.

Digital Tools Supporting Research

As the leading resource for epilepsy information online, we believe in creating digital tools that can accelerate epilepsy research. Our purpose is to ensure a rich echosystem for research and discovery. Learn about our digital research tools.

"Try these tools!"

Reviewed By:

Epilepsy Foundation Health Communications

on Tuesday, May 28, 2019

Resources

Epilepsy Centers

Epilepsy centers provide you with a team of specialists to help you diagnose your epilepsy and explore treatment options.

Epilepsy Medication

Find in-depth information on anti-seizure medications so you know what to ask your doctor.

Epilepsy and Seizures 24/7 Helpline

Call our Epilepsy and Seizures 24/7 Helpline and talk with an epilepsy information specialist or submit a question online.

Tools & Forms

Download our seizure tracking app, print out seizure action plans, or explore other educational materials.

Find an Epilepsy Specialist

Ready for help? Find an Epilepsy specialist who can help guide you through your epilepsy journey.