Lifestyle and Communication Toolkit

 

How to Prepare for Telemedicine

Telemedicine or telehealth visits provide a way to see your health care provider from your current location. Using audio and video, your visit allows you to see, hear, and talk with your provider over a secure connection. There are many ways to prepare for a virtual appointment from 1-2 days before to 1-2 hours beforehand. See the telemedicine checklist below for a full list of how to prepare for your telehealth appointment:

Lifestyle and Safety

Read this factsheet before purchasing a seizure alert device to help you make the best decision for yourself or a loved one

Ways to manage bullying

For Women

Women and girls with epilepsy can use this checklist to talk with their medical team about the unique health, safety, and treatment issues they face at different stages of life.

Self-management Tools

Organize your health care team and their contact information

Organize your 'to do list' for epilepsy management

Keep track of questions for your team

Keep track of questions and updates for visits
This publication was developed with funding from the federal Maternal and Child Health Bureau, Health Services and Resources Administration under grant #H98MCO 3905-03-01 funded to the USC UCEDD Children's Hospital Los Angeles, through its initiative, Project Access: Improving Care for Children with Epilepsy. Support was also provided by two other partners in Project Access: The National Initiative for Children’s Healthcare Quality (NICHQ), under grant #U23MC038893 and the Epilepsy Foundation, under grant # U23MC03909.

SUDEP Resources (English & Spanish)

SUDEP means sudden unexpected death in epilepsy.

SUDEP Institute's "Knowledge is Power" Fact Sheet has help finding the best care and questions to ask

Answers to frequently asked questions about SUDEP

A brochure with facts about SUDEP, tips for striving for seizure control, how to talk about SUDEP, how to become an ambassador for SUDEP awareness, and information about the SUDEP Institute.

Recommendations on reducing your child's risk for SUDEP
Our thanks to the Child Neurology Foundation and Danny Did Foundation for collaborating with the Epilepsy Foundation SUDEP Institute to create these factsheets.

Reviewed By:

Epilepsy Foundation Health Communications

on Monday, May 11, 2020

Resources

Epilepsy Centers

Epilepsy centers provide you with a team of specialists to help you diagnose your epilepsy and explore treatment options.

Epilepsy Medication

Find in-depth information on anti-seizure medications so you know what to ask your doctor.

Epilepsy and Seizures 24/7 Helpline

Call our Epilepsy and Seizures 24/7 Helpline and talk with an epilepsy information specialist or submit a question online.

Tools & Forms

Download our seizure tracking app, print out seizure action plans, or explore other educational materials.

Find an Epilepsy Specialist

Ready for help? Find an Epilepsy specialist who can help guide you through your epilepsy journey.