Lifestyle and Communication Toolkit
How to Prepare for Telemedicine
Telemedicine or telehealth visits provide a way to see your health care provider from your current location. Using audio and video, your visit allows you to see, hear, and talk with your provider over a secure connection. There are many ways to prepare for a virtual appointment from 1-2 days before to 1-2 hours beforehand. See the telemedicine checklist below for a full list of how to prepare for your telehealth appointment:
Lifestyle and Safety
Read this factsheet before purchasing a seizure alert device to help you make the best decision for yourself or a loved one
Ways to manage bullying
Women and girls with epilepsy can use this checklist to talk with their medical team about the unique health, safety, and treatment issues they face at different stages of life.
Organize your health care team and their contact information
Organize your 'to do list' for epilepsy management
Keep track of questions for your team
Keep track of questions and updates for visits
This publication was developed with funding from the federal Maternal and Child Health Bureau, Health Services and Resources Administration under grant #H98MCO 3905-03-01 funded to the USC UCEDD Children's Hospital Los Angeles, through its initiative, Project Access: Improving Care for Children with Epilepsy. Support was also provided by two other partners in Project Access: The National Initiative for Children’s Healthcare Quality (NICHQ), under grant #U23MC038893 and the Epilepsy Foundation, under grant # U23MC03909.
SUDEP Resources (English & Spanish)
SUDEP means sudden unexpected death in epilepsy.
SUDEP Institute's "Knowledge is Power" Fact Sheet has help finding the best care and questions to ask
Answers to frequently asked questions about SUDEP
A brochure with facts about SUDEP, tips for striving for seizure control, how to talk about SUDEP, how to become an ambassador for SUDEP awareness, and information about the SUDEP Institute.
Recommendations on reducing your child's risk for SUDEP
Our thanks to the Child Neurology Foundation and Danny Did Foundation for collaborating with the Epilepsy Foundation SUDEP Institute to create these factsheets.
Epilepsy centers provide you with a team of specialists to help you diagnose your epilepsy and explore treatment options.
Find in-depth information on anti-seizure medications so you know what to ask your doctor.
Epilepsy and Seizures 24/7 Helpline
Call our Epilepsy and Seizures 24/7 Helpline and talk with an epilepsy information specialist or submit a question online.
Tools & Forms
Download our seizure tracking app, print out seizure action plans, or explore other educational materials.