Forms & Resources


Our toolbox is the place to find resources for managing your epilepsy and other needs, helping your loved one, and teaching others about epilepsy and seizures.

Downloadable Toolkits

  • Difficult to Treat Seizures Toolkit - Anti-seizure medications work well for about 2 out of 3 people. This toolkit provides answers to questions, helps you navigate challenges, and connects you to resources for additional treatment options.
  • DEE Toolkit - Learn more about Developmental and Epileptic Encephalopathy with a toolkit which breaks down a rare, complex form of epilepsy diagnosis into an easy-to understand resource for you and your loved ones.
  • Seizure Safe Schools Teacher’s Toolkit - Discover a wealth of materials designed to empower teachers in delivering a successful seizure recognition and first aid training in the classroom. This toolkit includes an epilepsy overview, classroom resources, and PowerPoint presentations. Additionally, we’ve provided access to our online training portal, a platform to help you learn more about epilepsy and seizures.

Are you new to epilepsy and seizures?

Download our "New to Seizures and Epilepsy" guide to learn what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to improve you seizure control.

Are you or a loved one newly diagnosed? 

If you or someone you know has been recently diagnosed with epilepsy or seizures, finding the right resources can be overwhelming. Download the toolkit below to help you navigate your epilepsy journey. 

  • Newly Diagnosed Children and Youth Toolkit – 470,000 children in the United States have epilepsy. You and your child do not have to face epilepsy alone. This toolkit outlines the steps you can take to ensure that your child is getting the care they need. 

Want to help others know what to do when someone has a seizure?

Find videos, posters, and more in our "Seizure First Aid Resources" section that you can use to teach others seizure first aid.

Do you have questions about an epilepsy treatment?

Download treatment factsheets about surgery, vagus nerve stimulation (VNS), responsive neurostimulaton (RNS), and dietary therapy. Then take them to your next health care appointment and talk it over with your provider.

Are you taking care of your health and wellbeing?

Whether you live with epilepsy or care for someone who does, we all need to take time to care for ourselves. Download the "Wellness Support Tools" to find help with managing emotional health, diet and nutrition, physical activity, sleep, stress, social relationships, education and employment, and independent living.

Do you want to track your seizures? Do others know what to do when your or your child has a seizure?

Find tools in the "Seizure Forms" section to help you observe, record and keep track of seizures, as well as create action and response plans for adults, school children and camp.

Are you looking for tools to prepare for appointments and keep track of medications, notes and questions?

Find forms, checklists, and factsheets in the "Medication and Communication Tools" section to help you prepare for a telemedicine (or telehealth) appointment, manage medications, work with your health care team, understand sudden unexpected death in epilepsy (SUDEP), and more.

We Are Here - 24 Hours a Day, 7 Days a Week, Including Holidays

The Epilepsy & Seizures 24/7 Helpline has trained information specialists standing by to answer your questions about epilepsy and seizures. They can provide you with help, hope, support, guidance, and access to national and local resources.

Call 1-800-332-1000 (en Español 1-866-748-8008)

In Your Community and Online

More places you can find support, information and resources:

Digital Tools Supporting Research

As the leading resource for epilepsy information online, we believe in creating digital tools that can accelerate epilepsy research. Our purpose is to ensure a rich echosystem for research and discovery. Learn about our digital research tools.

"Try these tools!"

Reviewed By:

Epilepsy Foundation Health Communications

on Tuesday, May 28, 2019


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Epilepsy and Seizures 24/7 Helpline

Call our Epilepsy and Seizures 24/7 Helpline and talk with an epilepsy information specialist or submit a question online.


Tools & Resources

Get information, tips, and more to help you manage your epilepsy.


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