Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Thursday, May 23, 2024
Sharing Matthew’s Epilepsy Journey
My journey with epilepsy began in May of 2020. My son, Matthew, who was three years old at the time, was diagnosed with epilepsy at the height of the...
Wednesday, January 31, 2024
Sharing Parker's Epilepsy Journey
My daughter, Parker, is an active 5-year-old little girl. I am a teacher, and Parker and her sister, Paityn, always go to work with me during pre...
Thursday, January 04, 2024
Compartiendo Nuestra Historia
Me diagnosticaron con epilepsia ya de adulto. Mi esposa y yo regresábamos de las Vegas y, aparentemente, tuve una crisis epiléptica en la carretera...
Tuesday, December 19, 2023
Matthew's Journey With Dravet Syndrome
Matthew was diagnosed with epilepsy at 7 months old. We were convinced it was a one-time seizure. His siblings witnessed it and said he looked like a...
Tuesday, October 31, 2023
Sharing Our Stories to Create Awareness
I was diagnosed with epilepsy as an adult. My wife and I were driving home from Las Vegas, and apparently, I had experienced a seizure while in the...
Wednesday, June 28, 2023
Community Support Is Important for Caregivers
I was playing with our son Edward one morning when I noticed his eye twitch. He was 7 months old at the time. It seemed off, so I called our...
Connecting Epilepsy Families through Theater
Our family has been affected by epilepsy since my son had his first atypical tonic-clonic seizure when he was 6 months old. He was eventually...
Giving Back to Help Others on Their Journey
Our daughter Alex seemed normal at birth up until she began to crawl. That is when we noticed she wasn’t using her right arm or hand. We later found...
Fighting for Domenick
When Domenick was four years old, he started having these “episodes” where he would be running around playing and laughing and then would stop dead in...
Perry Family eJourney
Hear from Bernard and Edana Perry as they share their story, including how SUDEP awareness can help families and individuals minimize their risk. You...