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help with son
Wed, 05/03/2006 - 07:50Topic: Parents & Caregivers
hi all we are some what new to this my son whos 9 was dinosed in nov 05 . we stated lamictal and did very well on it for about amost 5 mo than came the rash , so then we started the depakote sprinkles . and is doing ok , his havinga lot of control issues now . but my man prob is i see things changing and im not sure if his sz are getting worse . was dion as atypicl absance sz. now im seeing some odd movements with his arms and head . im somewhat scared with this and not sure if im overreacting or not
Comments
Re: Re: help with son
Submitted by mom2tnt on Thu, 2006-05-04 - 08:49
he has just been having some twiching movements like this am be4 school he keep shaking his head like he had hair on his face (a short quick jerking) when iasked him about it :said was just happing "and a few other things like that we are going to the drs. today so we will see
Re: Re: Re: help with son
Submitted by shannon1220 on Thu, 2006-06-01 - 08:10
My son's epilepsy started out that way - a lot of jerky head movements & even hard eye blinking, mouth opening - turned into arms/leg jerking - falling down - at first we were told these were tics, 1 dr even cld it tourettes! It was not until 2 yrs ago that they actually captured clinical seizures with his movements because the actual seizure was "lightning fast". He also experiences this during high abnormal discharges occuring too. Have they done a video eeg on him where you can push a button every time he makes those movements? I would highly recommend that. Just curious, has your son ever had strep or an ASO Titer strep blood test?
Re: help with son
Submitted by spiz on Wed, 2006-05-03 - 09:40
Hi! Can you describe the odd movements? From what I've read, atypical seizures are seen in childhood absence epilepsy(CAE), juvenile absence epilepsy(JAE) and juvenile myoclonic epilepsy(JME). Here are some links to those. Maybe you'll see a description of what you are seeing him do. Hope this helps! http://www.epilepsy.com/epilepsy/epilepsy_childhoodabsence.html http://www.epilepsy.com/epilepsy/epilepsy_juvenileabsence.html http://www.epilepsy.com/epilepsy/epilepsy_juvenilemyoclonic.html Take care! -Spiz