Community Forum Archive
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Pseudo Seizures
Fri, 01/20/2006 - 13:47Comments
Re: Pseudo Seizures
Submitted by BellaCinderella on Sat, 2011-01-08 - 00:57
I am so grateful to have found this site. After a very long frustrating year, feeling like I am going out of my mind, finding this site has been a godsend. I am wondering if anyone knows of an ethical, supportive, yet passionate Dr. that truely wants to help me in the San Diego, Ca. area, PLEASE respond to this post. I am the sole provider for my family, and am getting to the point of not being able to work and take care of them. I look forward to your responses and suggestions. I am also wondering what medications have actually worked for some of the people that posted earlier.... Thanks for all your help!
I am so grateful to have found this site. After a very long frustrating year, feeling like I am going out of my mind, finding this site has been a godsend. I am wondering if anyone knows of an ethical, supportive, yet passionate Dr. that truely wants to help me in the San Diego, Ca. area, PLEASE respond to this post. I am the sole provider for my family, and am getting to the point of not being able to work and take care of them. I look forward to your responses and suggestions. I am also wondering what medications have actually worked for some of the people that posted earlier.... Thanks for all your help!
Re: Pseudo Seizures
Submitted by Jodispeaks on Wed, 2008-05-21 - 21:43
Hi everyone! My 17 year old daughter was just diagnosed with pseudoseizures. On average, she has approximately 2 or 3 seizures per day. She could be at home watching a movie, out with friends having a great time, sleeping or just relaxing a home. There is no particular time in which I can narrow down her seizures. She had a normal MRI, CT scan, EEG, 24 EEG as well as video monitoring at an epilepsy center. She was prescribed anti-seizural medications and recently taken off of them.
We are awaiting an appointment with a neuropsychologist. However, this diagnosis is very difficult to accept. Of course, my daughter cannot drive, be alone for long periods of time, go on any amusements, among many other activities.
My daughter is in 11th grade and has missed more than six weeks of school. Hospital neurologist advised me to send my daughter back to school and I have done so. However, I am getting calls mosts days from the school nurse. Today, after three separate seizures, I picked-up my daughter from school.
Any insight or advice would be greatly appreciated. This has been a nightmare for not only my daughter, but our family! (Although, please don't misunderstand me -- we are EXTREMELY supportive, compassionate, etc).
We are extremely desperate for help for my daughter! She just wants to be what she calls "normal" again.
Hi everyone! My 17 year old daughter was just diagnosed with pseudoseizures. On average, she has approximately 2 or 3 seizures per day. She could be at home watching a movie, out with friends having a great time, sleeping or just relaxing a home. There is no particular time in which I can narrow down her seizures. She had a normal MRI, CT scan, EEG, 24 EEG as well as video monitoring at an epilepsy center. She was prescribed anti-seizural medications and recently taken off of them.
We are awaiting an appointment with a neuropsychologist. However, this diagnosis is very difficult to accept. Of course, my daughter cannot drive, be alone for long periods of time, go on any amusements, among many other activities.
My daughter is in 11th grade and has missed more than six weeks of school. Hospital neurologist advised me to send my daughter back to school and I have done so. However, I am getting calls mosts days from the school nurse. Today, after three separate seizures, I picked-up my daughter from school.
Any insight or advice would be greatly appreciated. This has been a nightmare for not only my daughter, but our family! (Although, please don't misunderstand me -- we are EXTREMELY supportive, compassionate, etc).
We are extremely desperate for help for my daughter! She just wants to be what she calls "normal" again.
Re: Pseudo Seizures
Submitted by lorelama on Mon, 2008-05-12 - 18:34
Hi Starr,
I just went thru a 10 day stay at an Epilepsy Care Center, my second one in ten years. Roughly 8 years ago, I started having symptoms of numbness down my right side, my pointer finger and middle finger curling in, tremors in my back, my right eye closing on its own and having a very hard time talking. I thought it was seizures, break thru or other wize. My doctor at the time was coming back with no help what so ever. So 2 years ago I fired her, had my primary physician take care of me, diagnosed myself with his help with anxiety because of problems being in large groups, movies, things I used to be able to do when I was on tegretol but now that I was put on zonegran couldn't even walk out of my house.
Anyway, the 10 day stay with the VEEG came up with some very conclusive results, and i had a great team to work with. I have RTL GTC and type of migraine thing not related to my seizures. The other symptoms I have been having are non epileptic events or pseudo seizures stemming from anxiety and possibly PTSD.
So, don't dismiss the psuedo seizure part quiet yet, I will be upping my Effexor XR, and making an appt tomorrow to start seeing a psychologist regarding my anxiety and where this is stemming from. Because my non-epileptic events were actually worse than my GTC's. I quit working, quit socializing, dropped out of college, and quit all the things I love, and became a prisoner in my own home. That is how bad it got. Eight years is a long time to deal with it, don't weight as long as I did to find a doctor that will treat you as a whole.
Take care
Lorelama MN
Well behaved women rarely make history.
Hi Starr,
I just went thru a 10 day stay at an Epilepsy Care Center, my second one in ten years. Roughly 8 years ago, I started having symptoms of numbness down my right side, my pointer finger and middle finger curling in, tremors in my back, my right eye closing on its own and having a very hard time talking. I thought it was seizures, break thru or other wize. My doctor at the time was coming back with no help what so ever. So 2 years ago I fired her, had my primary physician take care of me, diagnosed myself with his help with anxiety because of problems being in large groups, movies, things I used to be able to do when I was on tegretol but now that I was put on zonegran couldn't even walk out of my house.
Anyway, the 10 day stay with the VEEG came up with some very conclusive results, and i had a great team to work with. I have RTL GTC and type of migraine thing not related to my seizures. The other symptoms I have been having are non epileptic events or pseudo seizures stemming from anxiety and possibly PTSD.
So, don't dismiss the psuedo seizure part quiet yet, I will be upping my Effexor XR, and making an appt tomorrow to start seeing a psychologist regarding my anxiety and where this is stemming from. Because my non-epileptic events were actually worse than my GTC's. I quit working, quit socializing, dropped out of college, and quit all the things I love, and became a prisoner in my own home. That is how bad it got. Eight years is a long time to deal with it, don't weight as long as I did to find a doctor that will treat you as a whole.
Take care
Lorelama MN
Well behaved women rarely make history.