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Opinions and Experiences for Epilepsy Treatment
Sat, 02/16/2019 - 10:14Topic: Share Your Story
There has been a recent email chain due to an upcoming presentation of a specific treatment for epilepsy that will be held at an upcoming Epilepsy Foundation Metropolitan Washington Meet Up group. Due to the emails that are being sent and that it has been going out on the general invitation email list I am moving the discussion to the Epilepsy.com Share Your Discussion Forum because I think it is a more appropriate place to continue the expressions of various opinions regarding Epilepsy Treatments.
Comments
I've had VNS for five years.
Submitted by birdman on Mon, 2019-02-18 - 19:57
I've had VNS for five years. It helped as I recovered more quickly from the seizures but it did not stop them. Also I enjoy singing in choir so wearing the magnet to keep it off during rehearsal and performance was a hassle.
Hi there, has anyone gone
Submitted by Gina2729 on Thu, 2019-02-28 - 14:08
Hi there, has anyone gone through withdrawals from Dilantin? Did you have any symptoms? How long did they last? My mom is 4 days from her last Dilantin pill and still is having memory problems and not connecting very well. She has been through a lot the last three months. Had a quadruple bypass, surgery caused a minor stroke, brain seizures (what the Nero at the hospital referred to them as) put her on high doses of Valproic Acid, Keppra and Dilantin. Went to a new neurologist at the Mayo Clinic who said the drugs were too much (she was like a zombie) so the tapering began. One drug at a time starting with Valproic acid, then Keppra and last Dilantin. Last pill was Saturday. We are just wondering if anyone else has go through withdrawals, what were the Symptoms and for how long?
Thanks for the offer; I would
Submitted by birdman on Mon, 2019-02-18 - 19:57
Thanks for the offer; I would love to go to one of Neuropace's meetings. Unfortunately I am in southwest Michigan (2 hrs from Chicago). Also on the 21st I am scheduled for surgery to have leads placed in the brain for EEG monitoring. This will be in Grand Rapids Michigan.