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Opinions and Experiences for Epilepsy Treatment

Sat, 02/16/2019 - 10:14

Topic: Share Your Story

There has been a recent email chain due to an upcoming presentation of a specific treatment for epilepsy that will be held at an upcoming Epilepsy Foundation Metropolitan Washington Meet Up group. Due to the emails that are being sent and that it has been going out on the general invitation email list I am moving the discussion to the Epilepsy.com Share Your Discussion Forum because I think it is a more appropriate place to continue the expressions of various opinions regarding Epilepsy Treatments.

Comments

I think I might have posted

Submitted by jblowitski on Mon, 2019-02-18 - 15:12

I think I might have posted an old link before http://meetu.ps/e/GnYfb/CJKjC/f

I have refractory epilepsy

Submitted by jblowitski on Mon, 2019-02-18 - 15:12

I have refractory epilepsy and my seizures are occurring at an extremely higher rate than yours and predominantly occurring in my left temporal lobe, but also in the right so resection was not an option for me (due to right and left locations). The only surgical options were the Vagus nerve stimulation (VNS) or the Responsive neurostimulation device (RNS). I chose RNS because it monitors and records my seizures providing my Epileptologist with valuable data regarding when and where they were occurring as well as that it only stimulated on demand based on the monitoring of my brain activity.

Thanks for the offer; I would

Submitted by birdman on Mon, 2019-02-18 - 19:54

Thanks for the offer; I would love to go to one of Neuropace's meetings. Unfortunately I am in southwest Michigan (2 hrs from Chicago). Also on the 21st I am scheduled for surgery to have leads placed in the brain for EEG monitoring. This will be in Grand Rapids Michigan.

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